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照顾智障儿童第二部分:对临时照顾工作者报告的评估及护理决策相关因素的详细分析。

Caring for children with intellectual disabilities part 2: Detailed analyses of factors involved in respite workers' reported assessment and care decisions.

作者信息

Genik Lara M, McMurtry C Meghan, Breau Lynn M

机构信息

Department of Psychology, University of Guelph, Canada.

Department of Psychology, University of Guelph, Canada; Pediatric Chronic Pain Program, McMaster Children's Hospital; Children's Health Research Institute, Canada; Department of Paediatrics, Western University, Canada.

出版信息

Res Dev Disabil. 2017 Apr;63:1-10. doi: 10.1016/j.ridd.2017.01.021. Epub 2017 Feb 20.

DOI:10.1016/j.ridd.2017.01.021
PMID:28222344
Abstract

UNLABELLED

Respite workers (RW) commonly care for children with intellectual disabilities (ID), and pain is common for these children. Little is known about factors which inform RW pain assessment and management-related decisions.

OBJECTIVES

To describe/determine the following in response to a series of pain-related scenarios (e.g., headache, falling): (1) factors considered important by RW when assessing children with ID's pain; (2) whether children's verbal ability impacts pain assessment factors considered; (3) RW assessment and management approach.

PARTICIPANTS

Fifty-six RW (18-67 years, M=33.37, 46 female).

PROCEDURE/MEASURES: In an online survey, participants read and responded to six vignettes manipulating child verbal ability (verbal, nonverbal) and pain source.

RESULTS

The factors most frequently considered when assessing pain were child behavior (range: 20-57.4%), and history (e.g., pain, general; 3.7-38.9%). Factors did not vary by child's verbal ability. RW indicated varied assessment and management-related actions (range: 1-11) for each scenario.

DISCUSSION

Findings suggest: a) factors informing pain assessment did not depend on whether or not the child was verbal and b) a degree of flexibility in RW response to pain across situations. While these findings are encouraging, ensuring RW have adequate pain assessment and management knowledge specific to children with ID is critical.

摘要

未标注

喘息服务工作者(RW)通常照顾智障儿童(ID),而这些儿童疼痛很常见。对于影响RW疼痛评估和管理相关决策的因素,人们了解甚少。

目的

针对一系列与疼痛相关的情景(如头痛、摔倒)描述/确定以下内容:(1)RW在评估智障儿童疼痛时认为重要的因素;(2)儿童的语言能力是否会影响所考虑的疼痛评估因素;(3)RW的评估和管理方法。

参与者

56名RW(年龄18 - 67岁,平均年龄M = 33.37岁,46名女性)。

程序/测量:在一项在线调查中,参与者阅读并回答了六个模拟儿童语言能力(语言、非语言)和疼痛来源的短文。

结果

评估疼痛时最常考虑的因素是儿童行为(范围:20% - 57.4%)和病史(如疼痛、一般情况;3.7% - 38.9%)。因素不因儿童的语言能力而有所不同。RW针对每个情景指出了不同的评估和管理相关行动(范围:1 - 11)。

讨论

研究结果表明:a)影响疼痛评估的因素并不取决于儿童是否能说话;b)RW在不同情况下对疼痛的反应有一定程度的灵活性。虽然这些结果令人鼓舞,但确保RW具备针对智障儿童的足够疼痛评估和管理知识至关重要。

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