Genik Lara M, McMurtry C Meghan, Barata Paula C, Barney Chantel C, Lewis Stephen P
Department of Psychology University of Guelph Guelph ON Canada.
Pediatric Chronic Pain Program McMaster Children's Hospital Hamilton ON Canada.
Paediatr Neonatal Pain. 2020 May 31;3(1):12-19. doi: 10.1002/pne2.12026. eCollection 2021 Mar.
Pain is common for children with intellectual and developmental disabilities. It is critical that caregivers have adequate pain assessment and management knowledge. The program has shown promise to provide pain-related knowledge and skills to respite workers; however, more systematic evaluation of the program is needed. This study aims to support 's RCT development by using stakeholder input to help determine a feasible approach for collecting behaviorally based outcomes. A secondary aim is to discuss relevant considerations and implications for others in the disability field conducting similar work.
METHODS/DESIGN: Four employees in children's respite organizations completed telephone interviews lasting approximately fifteen minutes and a questionnaire about feasible data collection approaches.
The use of questionnaire and focus group methodology was determined to be the most feasible method to evaluate participants' pain-related approaches in practice.
Special consideration should be made when making methodological-related choices during study development to help ensure study feasibility. The iterative approach described in this paper may also be helpful in clinical settings when designing program evaluations to enhance feasibility and suitability; it is particularly important for multifaceted organizations supporting individuals with complex needs including those with intellectual and developmental disabilities.
疼痛在智力和发育障碍儿童中很常见。照顾者具备足够的疼痛评估和管理知识至关重要。该项目已显示出有望为临时护理人员提供与疼痛相关的知识和技能；然而，需要对该项目进行更系统的评估。本研究旨在通过利用利益相关者的意见来支持[项目名称]的随机对照试验开发，以帮助确定一种可行的方法来收集基于行为的结果。次要目的是讨论残疾领域其他开展类似工作的人员的相关考虑因素和影响。
方法/设计：儿童临时护理机构的四名员工完成了时长约15分钟的电话访谈以及一份关于可行数据收集方法的问卷。
使用问卷和焦点小组方法被确定为评估参与者在实践中与疼痛相关方法的最可行方法。
在研究开发过程中做出与方法相关的选择时应特别考虑，以帮助确保研究的可行性。本文所述的迭代方法在设计项目评估以提高可行性和适用性时，在临床环境中可能也会有所帮助；对于支持有复杂需求个体（包括智力和发育障碍者）的多方面组织而言尤为重要。
