Biering-Sørensen Bo, Iversen Helle K, Frederiksen Inge M S, Vilhelmsen Jeanet R, Biering-Sørensen Fin
aSpasticity Clinic bStroke Unit cNeurological Clinic dClinic for Spinal Cord Injuries, Neuroscience Centre, Rigshospitalet, University of Copenhagen, Glostrup, Denmark.
Int J Rehabil Res. 2017 Jun;40(2):175-184. doi: 10.1097/MRR.0000000000000221.
The aim of this study is to develop a treatment diary for patients receiving spasticity treatment including botulinum toxin injection and physiotherapy and/or occupational therapy. The diary focuses on problems triggered by skeletal muscle overactivity; agreed goals for treatment and the patient's self-evaluation of achievement on the Goal Attainment Scale; which skeletal muscles were injected; physiotherapists' and occupational therapists' evaluation of the patients' achievement of objectives on the Goal Attainment Scale; and proposals for optimization of treatment and changing goals. The evaluation included a satisfaction questionnaire and the WHO-QoL BREF and WHO-5 well-being score. Overall, 10 patients were enrolled in the pilot study. The patients were generally satisfied with the diary, found that it involved them more in their treatment and made it easier to set personal goals, and found it worth the time spent using it. However, no clear advantage in relation to their quality of life (WHO-QoL BREF and WHO-5 well-being score) was reported.
本研究的目的是为接受痉挛治疗（包括肉毒杆菌毒素注射以及物理治疗和/或职业治疗）的患者制定一本治疗日记。该日记关注骨骼肌过度活动引发的问题；商定的治疗目标以及患者在目标达成量表上对达成情况的自我评估；注射了哪些骨骼肌；物理治疗师和职业治疗师对患者在目标达成量表上目标达成情况的评估；以及治疗优化和目标调整建议。评估包括一份满意度问卷、世界卫生组织生活质量简表（WHO-QoL BREF）和世界卫生组织-5幸福指数得分。总体而言，10名患者参与了这项试点研究。患者对该日记总体满意，发现它让他们更多地参与到治疗中，使设定个人目标更容易，并且觉得花时间使用它是值得的。然而，未报告在生活质量（世界卫生组织生活质量简表和世界卫生组织-5幸福指数得分）方面有明显优势。
