Graduate School of Nursing, Chiba University, Chiba, Chiba, Japan.
J Adv Nurs. 2017 Sep;73(9):2143-2155. doi: 10.1111/jan.13286. Epub 2017 Mar 27.
To explore the mourning process of people with dementia who have lost their spouse, using family caregivers' and professionals' perspectives and to devise grief care for people with dementia.
There have been studies on the loss of one's spouse; however, little is known about widows and widowers with dementia as they may find it hard to tell their perception and feelings to others accurately because of cognitive impairment.
Qualitative descriptive study using semi-structured interviews.
Seven family caregivers and six professional caregivers from day care centres were interviewed between June and September 2015. Qualitative content analysis was used to identify mourning behaviours of people with dementia.
In the mourning process of people with dementia, different behaviours were found according to dementia stages and different circumstances. In FAST2, they could remember their spouse's death. In FAST4 -6, it took 1 year to be able to perceive their spouse's death and more time to store it. In FAST 7, people with dementia did not discern his spouse's death throughout the process. Furthermore, it was revealed that people with dementia followed a different mourning process from conventional ones.
In the care of widows and widowers with dementia it is crucial to adjust circumstances to allow people with dementia to guess reality. Further studies are needed to clarify differences between the mourning process of people with dementia and that of intact older people to develop a grief model and educational programmes.
探讨配偶去世的痴呆症患者的丧亲过程，从家庭护理者和专业护理者的角度出发，并为痴呆症患者设计哀伤护理。
已有关于丧偶的研究，但对于痴呆症的寡妇和鳏夫知之甚少，因为他们可能由于认知障碍而难以准确地向他人表达自己的感知和感受。
采用半结构式访谈的定性描述性研究。
2015 年 6 月至 9 月期间，对 7 名家庭护理者和 6 名日托中心的专业护理者进行了访谈。采用定性内容分析法来识别痴呆症患者的哀伤行为。
在痴呆症患者的哀伤过程中，根据痴呆症的不同阶段和不同情况，出现了不同的行为。在 FAST2 阶段，他们可以记住配偶的死亡。在 FAST4-6 阶段，需要 1 年时间才能感知到配偶的死亡，并且需要更长的时间来存储。在 FAST7 阶段，痴呆症患者在整个过程中都没有意识到配偶的死亡。此外，研究揭示了痴呆症患者的哀伤过程与传统的哀伤过程不同。
在照顾痴呆症的寡妇和鳏夫时，至关重要的是要调整环境，让痴呆症患者能够猜测现实。需要进一步研究以阐明痴呆症患者与完整老年人的哀伤过程之间的差异，从而制定哀伤模型和教育计划。
