Al Qadire Mohammad
Adult Healthcare Nursing Department, Princess Salma Faculty of Nursing, Al Al-Bayt University, P.O.Box 130040, Mafraq, 25113, Jordan.
J Cancer Educ. 2018 Oct;33(5):996-1001. doi: 10.1007/s13187-017-1192-9.
There is no consensus among healthcare providers on a unified disclosure practice with regard to cancer diagnosis, whether to tell or not. This issue is complicated by the absence of a clear policy for healthcare practitioners, who face this dilemma every day in their clinical practice. This study uniquely aims to explore Jordanian public preference on cancer diagnosis disclosure and the type of information they need. A descriptive cross-sectional survey design was used in this study. The sample consisted of 485 participants who were conveniently selected from the Jordanian public, and data was collected using the Arabic-Cancer Patients Information Needs Questionnaire. The majority of participants were females (56.1%) and most of them (62.1%) were aged between 18 and 29 years. It was found that 421 (86.8%) participants wanted to be informed of the diagnosis if they developed cancer. Participants show high needs of information with mean of total score of 4.2 SD 0.7 out of 5. They mainly demanded to know the things that participants could do to help their cure (mean = 4.47, SD 0.77). Also, they wanted to know whether their cancer was under control or not (item no. 4, mean = 4.42, SD 0.81). This study marks a point of change in public thinking about health issues. Jordanian public preferred to be fully informed of their cancer diagnosis. They wanted information about their prognosis, treatment and the available supportive services, which are of great interest to the Jordanian public.
医疗服务提供者在癌症诊断的统一告知做法上,即在是否告知患者方面,尚未达成共识。由于缺乏针对医疗从业者的明确政策,这个问题变得更加复杂,他们在临床实践中每天都面临这种困境。本研究的独特目的是探索约旦公众对癌症诊断告知的偏好以及他们所需信息的类型。本研究采用了描述性横断面调查设计。样本由485名从约旦公众中方便选取的参与者组成,数据通过阿拉伯语版癌症患者信息需求问卷收集。大多数参与者为女性(56.1%),其中大多数(62.1%)年龄在18至29岁之间。研究发现,如果自己患了癌症,421名(86.8%)参与者希望被告知诊断结果。参与者对信息有很高的需求,总得分平均为4.2(满分5分,标准差0.7)。他们主要要求了解有助于治疗的方法(平均分为4.47,标准差0.77)。此外,他们想知道自己的癌症是否得到控制(第4项,平均分为4.42,标准差0.81)。这项研究标志着公众对健康问题的看法发生了转变。约旦公众希望充分了解自己的癌症诊断情况。他们想要了解有关预后、治疗以及可用支持服务等方面的信息,这些信息受到约旦公众的极大关注。