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约旦癌症患者的信息需求与信息寻求行为:一项描述性研究。

Jordanian cancer patients' information needs and information-seeking behaviour: a descriptive study.

作者信息

Al Qadire Mohammad

机构信息

Faculty of Nursing, Al al-Bayt University, Mafraq 25113, Jordan.

出版信息

Eur J Oncol Nurs. 2014 Feb;18(1):46-51. doi: 10.1016/j.ejon.2013.09.007. Epub 2013 Oct 30.

Abstract

BACKGROUND

Cancer diagnosis can leave patients with uncertainty and anxiety that can be reduced by providing timely information and effective communication. Despite information provision being highly important in improving the quality of provided care, no study had been conducted to assess the information needs of Jordanian cancer patients.

AIM

To investigate the information needs of Jordanian cancer patients.

METHODS

A quantitative research method and a descriptive cross-sectional survey design were used. The sample consisted of 182 Jordanian cancer patients. Participants were recruited from two hospitals; one of them was a university hospital and the second was governmental hospital.

RESULTS

The mean age was 46.5 (SD 15.8 years); 52% of the sample were males. In addition, 38% of the patients had haematological tumours and 20% had gastro-intestinal tumours. The majority (157) wanted information about cancer. The results showed that patients would like to know everything about their disease (mean = 3.1, SD 0.9) and medical tests (mean = 3.0, SD 1.0). The results also revealed that younger patients, those who were working, and those with a high income had high information needs. However, patients who had reached the stage of palliative care seemed to require a lesser amount of information than those in the early stage of treatment.

CONCLUSIONS

Many factors may cause variations in patients' information-seeking behaviour. Therefore, a notational policy for information provision is needed to satisfy different patients' information needs. Healthcare providers should be aware that cancer patients' will continue to need information at all stages.

摘要

背景

癌症诊断会让患者产生不确定性和焦虑感,而及时提供信息和进行有效沟通可以减轻这些情绪。尽管提供信息对于提高所提供护理的质量非常重要,但尚未有研究评估约旦癌症患者的信息需求。

目的

调查约旦癌症患者的信息需求。

方法

采用定量研究方法和描述性横断面调查设计。样本包括182名约旦癌症患者。参与者从两家医院招募;其中一家是大学医院,另一家是政府医院。

结果

平均年龄为46.5岁(标准差15.8岁);样本中52%为男性。此外,38%的患者患有血液肿瘤,20%患有胃肠道肿瘤。大多数(157名)患者想要了解有关癌症的信息。结果显示,患者希望了解关于其疾病的一切(均值=3.1,标准差0.9)以及医学检查方面的信息(均值=3.0,标准差1.0)。结果还表明,年轻患者、在职患者和高收入患者的信息需求较高。然而,已进入姑息治疗阶段的患者似乎比处于治疗早期的患者所需信息更少。

结论

许多因素可能导致患者信息寻求行为的差异。因此,需要制定信息提供的规范政策以满足不同患者的信息需求。医疗保健提供者应意识到癌症患者在所有阶段都将持续需要信息。

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