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公共资金与研究的开放获取:加拿大多发性硬化症研究综述

Public Funding and Open Access to Research: A Review of Canadian Multiple Sclerosis Research.

作者信息

Bakker Caitlin, Stephenson Carol, Stephenson Erin, Chaves Debbie

机构信息

Health Sciences Libraries, University of Minnesota, Minneapolis, MN, United States.

Council of Prairie and Pacific University Libraries, Vancouver, BC, Canada.

出版信息

J Med Internet Res. 2017 Feb 27;19(2):e52. doi: 10.2196/jmir.6250.

DOI:10.2196/jmir.6250
PMID:28242594
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5348618/
Abstract

BACKGROUND

Multiple sclerosis (MS), a progressive demyelinating disease of the brain and spinal cord, is the leading cause of nontraumatic neurological damage in young adults. Canada has one of the highest reported incidents of MS, with estimates between 55 and 240 per 100,000 individuals. Between 2009 and 2014, the MS Society of Canada provided over Can $90 million to researchers and, since 2013, has encouraged researchers to make both current and previous research products openly available.

OBJECTIVE

The goal of the study was to determine the open access (OA) cost implications and repository policies of journals frequently used by a sample of MS researchers. This study benchmarked current publishing preferences by MS Society of Canada researchers by examining the OA full-text availability of journal articles written by researchers funded between 2009 and 2014.

METHODS

Researchers were identified from the 2009 to 2014 annual MS Society of Canada Research Summaries. Articles were identified through searches in Web of Science, Scopus, Medline and Embase (both via OVID). Journal level analysis included comparison of OA policies, including article processing charges (APCs) and repository policies. Data were analyzed using descriptive statistics.

RESULTS

There were 758 articles analyzed in this study, of which 288 (38.0%) were OA articles. The majority of authors were still relying on journal policies for deposit in PubMed Central or availability on publisher websites for OA. Gold OA journals accounted for 10.2% of the journals in this study and were associated with significantly lower APCs (US $1900) than in hybrid journals (US $3000). Review of the journal self-archiving options highlighted the complexity of stipulations that authors would have to navigate to legally deposit a version of their article.

CONCLUSIONS

This study found that there are currently researcher- and publisher-imposed barriers to both the gold and green roads to OA. These results provide a current benchmark against which efforts to enhance openness can be measured and can serve as a reference point in future assessments of the impact of OA policies within this field. With funding agencies worldwide releasing OA mandates, future success in compliance will require changes to how researchers and publishers approach production and dissemination of research.

摘要

背景

多发性硬化症(MS)是一种脑和脊髓的进行性脱髓鞘疾病,是年轻成年人非创伤性神经损伤的主要原因。加拿大是报告的MS发病率最高的国家之一,估计每10万人中有55至240人患病。2009年至2014年期间,加拿大MS协会向研究人员提供了超过9000万加元,并且自2013年以来,鼓励研究人员将当前和以前的研究成果公开提供。

目的

该研究的目的是确定MS研究人员样本经常使用的期刊的开放获取(OA)成本影响和存储政策。本研究通过检查2009年至2014年期间获得资助的研究人员撰写的期刊文章的OA全文可用性,对加拿大MS协会研究人员当前的出版偏好进行了基准测试。

方法

从2009年至2014年加拿大MS协会年度研究摘要中识别研究人员。通过在Web of Science、Scopus、Medline和Embase(均通过OVID)中搜索来识别文章。期刊层面的分析包括对OA政策的比较,包括文章处理费(APC)和存储政策。使用描述性统计分析数据。

结果

本研究分析了758篇文章,其中288篇(38.0%)是OA文章。大多数作者仍然依赖期刊政策将文章存入PubMed Central或在出版商网站上获取OA。金色OA期刊占本研究中期刊的10.2%且与混合期刊(3000美元)相比APC显著更低(1900美元)。对期刊自我存档选项的审查突出了作者为合法存入其文章版本而必须遵循的规定的复杂性。

结论

本研究发现,目前在通往金色和绿色OA道路上存在研究人员和出版商造成的障碍。这些结果提供了一个当前基准,据此可以衡量增强开放性的努力,并可作为该领域未来OA政策影响评估的参考点。随着全球资助机构发布OA指令,未来在合规方面的成功将需要研究人员和出版商改变研究成果的产出和传播方式。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f71/5348618/41b9ec4952a9/jmir_v19i2e52_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f71/5348618/82daac2463af/jmir_v19i2e52_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f71/5348618/41b9ec4952a9/jmir_v19i2e52_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f71/5348618/82daac2463af/jmir_v19i2e52_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f71/5348618/41b9ec4952a9/jmir_v19i2e52_fig2.jpg

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本文引用的文献

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Immunoablation and autologous haemopoietic stem-cell transplantation for aggressive multiple sclerosis: a multicentre single-group phase 2 trial.免疫消融和自体造血干细胞移植治疗侵袭性多发性硬化症:一项多中心单组 2 期临床试验。
Lancet. 2016 Aug 6;388(10044):576-85. doi: 10.1016/S0140-6736(16)30169-6. Epub 2016 Jun 9.
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Social Media Representation of Chronic Cerebrospinal Venous Insufficiency Intervention for Multiple Sclerosis.
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Int J MS Care. 2016 Mar-Apr;18(2):49-57. doi: 10.7224/1537-2073.2014-073.
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Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project.为多发性硬化症患者提供循证信息的网站的开发与评估:IN-DEEP项目
BMC Neurol. 2016 Mar 2;16:30. doi: 10.1186/s12883-016-0552-0.
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The Impact of Social Media on Dissemination and Implementation of Clinical Practice Guidelines: A Longitudinal Observational Study.社交媒体对临床实践指南传播与实施的影响:一项纵向观察研究。
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In an Age of Open Access to Research Policies: Physician and Public Health NGO Staff Research Use and Policy Awareness.在研究政策开放获取的时代:医生与公共卫生非政府组织工作人员的研究使用情况及政策认知
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