Nevedal Andrea, Neufeld Stewart, Luborsky Mark, Sankar Andrea
Department of Veterans Affairs Palo Alto Health Care System, Center for Innovation to Implementation, Menlo Park, CA, USA.
Institute of Gerontology, Wayne State University, Detroit, MI, USA.
J Cross Cult Gerontol. 2017 Jun;32(2):171-189. doi: 10.1007/s10823-016-9309-x.
This paper reports findings from a study that compared older (n = 21, ≥ age 50) and younger (n = 96, ≤ age 49) African Americans' stories (N = 117) of living with HIV/AIDS to determine how they make sense of the experience. The purpose was to: (1) identify and describe the cultural models African Americans use to inform their stories of living with HIV/AIDS, and (2) to compare older and younger adults' HIV stories. To characterize the cultural models engaged in the telling of these HIV stories, we conducted schema analysis. Analyses documented six diverse schemas, ranging from "Stages of Grief", "12 Steps", "Wake Up Call", "Continuity of Life", to "Angry and Fearful", "Shocked and Amazed". Comparison conducted by age group showed older adults more frequently expressed their story of living with HIV as "Stages of Grief" and "Continuity of Life", whereas younger adults expressed their stories as "12 Steps" and "Wake Up Call". Findings contribute by documenting African American stories of living with HIV/AIDS, important heterogeneity in cultural schemas for experiences of living with HIV and differences by age group. These findings may help by identifying the cultural resources as well as challenges experienced with aging while living with HIV/AIDS for African Americans.
本文报告了一项研究的结果,该研究比较了年龄较大(n = 21,≥50岁)和年龄较小(n = 96,≤49岁)的非裔美国人(N = 117)感染艾滋病毒/艾滋病后的生活经历,以确定他们如何理解这段经历。目的是:(1)识别和描述非裔美国人用于讲述感染艾滋病毒/艾滋病后生活经历的文化模式,以及(2)比较老年人和年轻人的艾滋病毒经历。为了描述讲述这些艾滋病毒经历时所涉及的文化模式,我们进行了图式分析。分析记录了六种不同的图式,从“悲伤阶段”“12步”“警钟”“生活的连续性”到“愤怒与恐惧”“震惊与惊讶”。按年龄组进行的比较显示,老年人更频繁地将他们感染艾滋病毒后的生活经历描述为“悲伤阶段”和“生活的连续性”,而年轻人则将他们的经历描述为“12步”和“警钟”。研究结果通过记录非裔美国人感染艾滋病毒/艾滋病后的生活经历、艾滋病毒感染经历中文化图式的重要异质性以及年龄组差异,做出了贡献。这些发现可能有助于识别非裔美国人在感染艾滋病毒/艾滋病期间随着年龄增长所经历的文化资源和挑战。