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年长与年轻非裔美国人的故事模式及感染艾滋病毒/艾滋病的生活经历

Older and Younger African Americans' Story Schemas and Experiences of Living with HIV/AIDS.

作者信息

Nevedal Andrea, Neufeld Stewart, Luborsky Mark, Sankar Andrea

机构信息

Department of Veterans Affairs Palo Alto Health Care System, Center for Innovation to Implementation, Menlo Park, CA, USA.

Institute of Gerontology, Wayne State University, Detroit, MI, USA.

出版信息

J Cross Cult Gerontol. 2017 Jun;32(2):171-189. doi: 10.1007/s10823-016-9309-x.

DOI:10.1007/s10823-016-9309-x
PMID:28258333
Abstract

This paper reports findings from a study that compared older (n = 21, ≥ age 50) and younger (n = 96, ≤ age 49) African Americans' stories (N = 117) of living with HIV/AIDS to determine how they make sense of the experience. The purpose was to: (1) identify and describe the cultural models African Americans use to inform their stories of living with HIV/AIDS, and (2) to compare older and younger adults' HIV stories. To characterize the cultural models engaged in the telling of these HIV stories, we conducted schema analysis. Analyses documented six diverse schemas, ranging from "Stages of Grief", "12 Steps", "Wake Up Call", "Continuity of Life", to "Angry and Fearful", "Shocked and Amazed". Comparison conducted by age group showed older adults more frequently expressed their story of living with HIV as "Stages of Grief" and "Continuity of Life", whereas younger adults expressed their stories as "12 Steps" and "Wake Up Call". Findings contribute by documenting African American stories of living with HIV/AIDS, important heterogeneity in cultural schemas for experiences of living with HIV and differences by age group. These findings may help by identifying the cultural resources as well as challenges experienced with aging while living with HIV/AIDS for African Americans.

摘要

本文报告了一项研究的结果,该研究比较了年龄较大(n = 21,≥50岁)和年龄较小(n = 96,≤49岁)的非裔美国人(N = 117)感染艾滋病毒/艾滋病后的生活经历,以确定他们如何理解这段经历。目的是:(1)识别和描述非裔美国人用于讲述感染艾滋病毒/艾滋病后生活经历的文化模式,以及(2)比较老年人和年轻人的艾滋病毒经历。为了描述讲述这些艾滋病毒经历时所涉及的文化模式,我们进行了图式分析。分析记录了六种不同的图式,从“悲伤阶段”“12步”“警钟”“生活的连续性”到“愤怒与恐惧”“震惊与惊讶”。按年龄组进行的比较显示,老年人更频繁地将他们感染艾滋病毒后的生活经历描述为“悲伤阶段”和“生活的连续性”,而年轻人则将他们的经历描述为“12步”和“警钟”。研究结果通过记录非裔美国人感染艾滋病毒/艾滋病后的生活经历、艾滋病毒感染经历中文化图式的重要异质性以及年龄组差异,做出了贡献。这些发现可能有助于识别非裔美国人在感染艾滋病毒/艾滋病期间随着年龄增长所经历的文化资源和挑战。

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Gerontologist. 2016 Aug;56(4):762-71. doi: 10.1093/geront/gnu160. Epub 2015 Feb 3.
2
"Keep it simple": older African Americans' preferences for a health literacy intervention in HIV management.“保持简单”:年长非裔美国人对艾滋病病毒管理中健康素养干预措施的偏好
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Alchemists' Visions: Cultural Norms in Eliciting and Analyzing Life History Narratives.
炼金术士的愿景:引出和分析生命史叙事中的文化规范
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The impact of HIV-related stigma on older and younger adults living with HIV disease: does age matter?与艾滋病毒相关的污名对感染艾滋病毒的老年人和年轻人的影响:年龄有影响吗?
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Taking it one day at a time: African American women aging with HIV and co-morbidities.一次一天:患有 HIV 合并症的非裔美国老年女性。
AIDS Patient Care STDS. 2014 Jul;28(7):372-80. doi: 10.1089/apc.2014.0024. Epub 2014 Jun 16.
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Outcomes in older versus younger patients over 96 weeks in HIV-1- infected patients treated with rilpivirine or efavirenz in ECHO and THRIVE.在ECHO和THRIVE研究中,接受rilpivirine或efavirenz治疗的HIV-1感染患者中,年龄较大与年龄较小患者96周的治疗结果。
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A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.一项关于非裔美国人、拉丁裔、亚裔美国人和太平洋岛民参与少数族裔研究的障碍和促进因素的系统评价。
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AIDS Behav. 2014 Apr;18(4):661-75. doi: 10.1007/s10461-013-0627-5.
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"You're an open target to be abused": a qualitative study of stigma and HIV self-disclosure among Black men who have sex with men.“你是被虐待的公开目标”:一项针对与男性发生性关系的黑人男性的耻辱感和 HIV 自我披露的定性研究。
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