Hausmann Jonathan S, Touloumtzis Currie, White Matthew T, Colbert James A, Gooding Holly C
Program in Rheumatology, Division of Immunology, Department of Medicine, Boston Children's Hospital, Boston, Massachusetts; Division of Rheumatology, Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts.
Division of Adolescent/Adult Medicine, Department of Medicine, Boston Children's Hospital, Boston, Massachusetts.
J Adolesc Health. 2017 Jun;60(6):714-719. doi: 10.1016/j.jadohealth.2016.12.025. Epub 2017 Mar 1.
To determine how adolescents and young adults (AYAs) use social media to share health information and to assess attitudes toward using social media to obtain health information and communicate with medical providers.
A cross-sectional study of AYAs, 12 years or older, attending a primary care adolescent and young adult clinic. Participants completed an anonymous survey about health-related social media use, personal health, and communication with their health care team.
Of the 244 patients approached, 204 enrolled (83.6% participation rate). Almost all (98%) had used social media within the prior month, but only 51.5% had shared health information in these networks. These participants shared about mood (76.2%), wellness (57.1%), and acute medical conditions (41.9%). Those with self-reported poor health were more likely to share health information than other groups. Privacy was the most important factor determining which platform to use. Only 25% thought that social media could provide them with useful health information. Few AYAs connected with their health care team on social media and most did not want to use this method; texting was preferred.
AYAs maintain their privacy on social media regarding their health. Those with self-perceived poor health are more likely to share health information, potentially biasing online content and impairing the generalizability of social media research. AYAs do not view social media as a useful source of health information, which may limit the utility of public health messages through these platforms, and it may not be adequate for communication between patients and their health care team.
确定青少年和青年(AYAs)如何使用社交媒体分享健康信息,并评估他们对利用社交媒体获取健康信息以及与医疗服务提供者沟通的态度。
对12岁及以上在初级保健青少年和青年诊所就诊的AYAs进行横断面研究。参与者完成了一项关于与健康相关的社交媒体使用、个人健康状况以及与医疗团队沟通的匿名调查。
在244名被邀请的患者中,204名登记参加(参与率为83.6%)。几乎所有(98%)参与者在前一个月内使用过社交媒体,但只有51.5%在这些网络中分享过健康信息。这些参与者分享的内容包括情绪(76.2%)、健康状况(57.1%)和急性疾病(41.9%)。自我报告健康状况较差的参与者比其他群体更有可能分享健康信息。隐私是决定使用哪个平台的最重要因素。只有25%的人认为社交媒体能为他们提供有用的健康信息。很少有AYAs在社交媒体上与医疗团队建立联系,大多数人不想使用这种方式;他们更喜欢发短信。
AYAs在社交媒体上对自己的健康状况保持隐私。自我感觉健康状况较差的人更有可能分享健康信息,这可能会使在线内容产生偏差,并影响社交媒体研究的普遍性。AYAs不认为社交媒体是健康信息的有用来源,这可能会限制通过这些平台传播的公共卫生信息的效用,而且它可能不足以用于患者与医疗团队之间的沟通。