Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.
Swansea Trials Unit,School of Medicine,Swansea University,Swansea,UK.
Int Psychogeriatr. 2017 Jul;29(7):1213-1221. doi: 10.1017/S1041610217000291. Epub 2017 Mar 7.
Dementia is a major health problem with a growing number of people affected by the condition, both directly and indirectly through caring for someone with dementia. Many live at home but little is known about the range and intensity of the support they receive. Previous studies have mainly reported on discrete services within a single geographical area. This paper presents a protocol for study of different services across several sites in England. The aim is to explore the presence, effects, and cost-effectiveness of approaches to home support for people in later stage dementia and their carers.
This is a prospective observational study employing mixed methods. At least 300 participants (people with dementia and their carers) from geographical areas with demonstrably different ranges of services available for people with dementia will be selected. Within each area, participants will be recruited from a range of services. Participants will be interviewed on two occasions and data will be collected on their characteristics and circumstances, quality of life, carer health and burden, and informal and formal support for the person with dementia. The structured interviews will also collect qualitative data to explore the perceptions of older people and carers.
This national study will explore the components of appropriate and effective home support for people with late stage dementia and their carers. It aims to inform commissioners and service providers across health and social care.
痴呆症是一个主要的健康问题，越来越多的人受到该疾病的直接或间接影响，包括照顾痴呆症患者的人。许多患者居住在家庭中，但对于他们所获得的支持的范围和强度知之甚少。先前的研究主要报告了单一地理区域内的离散服务。本文提出了一项针对英格兰多个地点的不同服务的研究方案。其目的是探索为处于晚期痴呆症的患者及其照顾者提供家庭支持的方法的存在、效果和成本效益。
这是一项前瞻性观察研究，采用混合方法。将从明显具有不同范围的痴呆症患者服务的地理区域中选择至少 300 名参与者（痴呆症患者及其照顾者）。在每个区域内，将从各种服务中招募参与者。将在两次访谈中对参与者进行访谈，并收集他们的特征和情况、生活质量、照顾者的健康和负担以及对痴呆症患者的非正式和正式支持的数据。结构化访谈还将收集定性数据，以探讨老年人和照顾者的看法。
这项全国性研究将探索为晚期痴呆症患者及其照顾者提供适当和有效的家庭支持的组成部分。其旨在为卫生和社会保健领域的决策者和服务提供者提供信息。
