George Sheba M, Hayes Erin Moran, Fish Allison, Daskivich Lauren Patty, Ogunyemi Omolola I
Charles R. Drew University, Los Angeles, CA; UCLA, Los Angeles, CA.
L.A. Pierce College, Woodland Hills, CA.
AMIA Annu Symp Proc. 2017 Feb 10;2016:590-599. eCollection 2016.
Safety-net patients' socioeconomic barriers interact with limited digital and health literacies to produce a "knowledge gap" that impacts the delivery of healthcare via telehealth technologies. Six focus groups (2 African- American and 4 Latino) were conducted with patients who received teleretinal screening in a U.S. urban safety-net setting. Focus groups were analyzed using a modified grounded theory methodology. Findings indicate that patients' knowledge gap is primarily produced at three points during the delivery of care: (1) exacerbation of patients' pre-existing personal barriers in the clinical setting; (2) encounters with technology during screening; and (3) lack of follow up after the visit. This knowledge gap produces confusion, potentially limiting patients' perceptions of care and their ability to manage their own care. It may be ameliorated through delivery of patient education focused on both disease pathology and specific role of telehealth technologies in disease management.
安全网患者的社会经济障碍与有限的数字素养和健康素养相互作用,产生了一种“知识差距”,这影响了通过远程医疗技术提供的医疗服务。在美国城市安全网环境中,对接受远程视网膜筛查的患者进行了六个焦点小组(2个非裔美国人和4个拉丁裔)的研究。焦点小组采用改进的扎根理论方法进行分析。研究结果表明,患者的知识差距主要在护理提供过程中的三个点产生:(1)临床环境中患者先前存在的个人障碍加剧;(2)筛查过程中与技术的接触;(3)就诊后缺乏随访。这种知识差距会导致困惑,可能会限制患者对护理的认知以及他们自我管理护理的能力。通过提供侧重于疾病病理学和远程医疗技术在疾病管理中的具体作用的患者教育,这种差距可能会得到改善。