Faculty of Health and Social Care, Edge Hill University, Ormskirk, UK; Children's Nursing Research Unit, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
Children's Nursing Research Unit, Alder Hey Children's NHS Foundation Trust, Liverpool, UK; University of Northern British Columbia, Canada.
Patient Educ Couns. 2017 Aug;100(8):1537-1543. doi: 10.1016/j.pec.2017.03.004. Epub 2017 Mar 6.
This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute children's tertiary setting in the UK.
A prospective concurrent mixed method design collected interview (n=70) and questionnaire (n=68) data at two time-points from befrienders (n=13) and befriendees (n=26).
The main qualitative findings of the study relate to the different degrees parents (befriendees and befrienders) moved from being lost, to finding and being a guide and getting to a better place. The quantitative findings demonstrate that parent-to-parent peer support has a positive influence on parents' levels of psychological distress and their ability to cope with being a parent of a child with a disability.
The befriending scheme acted as a catalyst for many parents to move towards a place where they could grow and begin to flourish and thrive.
Professionals should inform parents who have a child with a disability that peer-to-peer parenting support schemes are a valuable and appropriate source of support and help.
本文将报告一项研究的结果,该研究调查了一个交友(家长间同伴支持)计划对有残疾或其他特殊需求儿童的家长的影响。该计划在英国一家急性儿童三级医疗机构运作。
前瞻性同期混合方法设计在两个时间点从交友者(n=13)和受助者(n=26)收集了访谈(n=70)和问卷调查(n=68)数据。
研究的主要定性发现涉及父母(受助者和交友者)从迷失、寻找、成为指导者并到达更好的地方的不同程度。定量发现表明,家长间同伴支持对父母的心理困扰程度和应对残疾儿童父母身份的能力有积极影响。
交友计划充当了许多父母的催化剂,使他们能够朝着成长、开始繁荣和茁壮成长的方向前进。
专业人员应该告知有残疾儿童的父母,同伴育儿支持计划是一种有价值且合适的支持和帮助来源。