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在尼泊尔,作为一名使用下肢假肢的人生活。

Living as a person using a lower-limb prosthesis in Nepal.

机构信息

a Department of Health Sciences, Faculty of Medicine , Lund University , Lund , Sweden.

b Nepal Country Office, CBM , Kathmandu , Nepal.

出版信息

Disabil Rehabil. 2018 Jun;40(12):1426-1433. doi: 10.1080/09638288.2017.1300331. Epub 2017 Mar 21.

Abstract

PURPOSE

The purpose of this study is to explore experiences of persons in Nepal using lower-limb prostheses, in relation to specific articles in the Convention on the Rights of Persons with Disabilities that consider mobility, education, health, rehabilitation, and work and employment.

METHOD

Qualitative interviews were conducted with 16 persons using lower limb prostheses. Content analysis was applied to the data.

RESULTS

Six themes emerged: The lower-limb prosthesis is essential for mobility and daily life; Limited mobility in challenging terrain and request for reduced pain when using prosthesis; Difficulties in finding and sustaining employment emphasized the importance of vocational training; Appreciation of comprehensive rehabilitation together with other persons with amputations, but covering related costs is a struggle; Satisfied with health care, but concerned that it creates debt and dependence upon others; and finally, Limited ability creates negative self-image and varied attitudes in other people.

CONCLUSION

Persons with lower-limb amputations were restricted by poverty and wanted increased independence. Rehabilitation and prosthetic services in Nepal need to increase proportionally as they contribute to enabling those persons to a better daily life. Prostheses were essential but more advanced technology was requested. Access to education and vocational training has the potential to improve the socio-economic status of those with lower-limb amputations due lack of employment not requiring physical effort. Implications for rehabilitation To increase access for persons with lower-limb amputations in Nepal to rehabilitation services, these services need to increase proportionally, and the policy for financial compensation to enable those persons to afford transportation to the rehabilitation center should be implemented. The design and manufacture of the low-cost polypropylene technology for prostheses used in Nepal needs to be improved, directed towards increasing the ability to ambulate on uneven surfaces and hilly terrain, and the ability to walk long distances. Adjustments of employment for persons with physical disabilities in Nepal have the potential to strengthen their socio-economic status. Vocational training programs and educational opportunities for persons with physical disabilities have the potential to improve income-generating employment and need to increase proportionally in Nepal. The policies developed in accordance with the Convention on the Rights of Persons with Disabilities need to be further implemented to decrease existing barriers to access to general health care and rehabilitation and prosthetic services for persons with disabilities in Nepal.

摘要

目的

本研究旨在探讨尼泊尔使用下肢假肢者的体验,具体涉及《残疾人权利公约》中有关移动性、教育、健康、康复以及工作和就业的特定条款。

方法

对 16 名使用下肢假肢者进行了定性访谈。对数据进行了内容分析。

结果

出现了 6 个主题:下肢假肢对于移动性和日常生活至关重要;在具有挑战性的地形中移动能力有限,并且在使用假肢时要求减少疼痛;难以找到和维持工作,强调了职业培训的重要性;赞赏与截肢者一起接受全面康复,但覆盖相关费用是一项斗争;对医疗保健感到满意,但担心这会造成债务并依赖他人;最后,有限的能力会造成自我形象负面和他人的不同态度。

结论

下肢截肢者受到贫困的限制,并希望增加独立性。尼泊尔的康复和假肢服务需要相应增加,因为这有助于使这些人过上更好的日常生活。假肢是必不可少的,但需要请求更先进的技术。由于缺乏不需要体力劳动的就业机会,获得教育和职业培训有可能改善下肢截肢者的社会经济地位。

康复的意义

为了增加尼泊尔下肢截肢者获得康复服务的机会,这些服务需要相应增加,并且应该实施一项政策,为这些人提供经济补偿,以使他们能够负担得起前往康复中心的交通费用。需要改进尼泊尔使用的低成本聚丙烯技术假肢的设计和制造,以提高在不平坦表面和丘陵地形上行走的能力以及长距离行走的能力。调整尼泊尔身体残疾人士的就业机会有可能增强他们的社会经济地位。职业培训计划和身体残疾人士的教育机会有可能改善创收就业机会,并且需要在尼泊尔相应增加。需要进一步实施根据《残疾人权利公约》制定的政策,以减少尼泊尔残疾人获得一般医疗保健、康复和假肢服务的现有障碍。

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