Pool Health Centre, Cornwall, UK.
St. Austell Healthcare, Cornwall, UK.
J Adv Nurs. 2017 Oct;73(10):2318-2326. doi: 10.1111/jan.13300. Epub 2017 May 15.
To explore the impact of the diagnosis of polycystic ovary syndrome on health/ill health identity, how women experience this diagnosis and their health beliefs.
Polycystic ovary syndrome is a common and heterogeneous condition, giving rise to a wide range of different health concerns. Previous research on polycystic ovary syndrome has been dominated by the medical perspective and less is known about the experiences and needs of women.
A qualitative study of 32 premenopausal adult women with polycystic ovary syndrome (diagnosis confirmed by Rotterdam criteria), aged between 18 and 45 years, recruited from a primary and secondary care setting.
Thematic analysis of transcripts from 11 focus groups conducted between 2013-2015.
RESULTS/FINDINGS: Women identified a range of concerns affecting personal and reproductive identity, health knowledge and beliefs: (1) delays and barriers to diagnosis; (2) general lack of empathy by the medical profession; (3) difficulty in accessing specialist referral; (4) lack of information from professionals; (5) inconsistent and sometimes unsatisfactory experiences with medications; (6) insufficient help and advice regarding in/fertility; (7) relative lack of awareness or concern about longer term risks such as diabetes; and (8) significant discrepancies between the beliefs of women with polycystic ovary syndrome and how they experienced the attitudes of healthcare professionals.
There appears to be a divergence between women's experience and attitudes of healthcare professionals. The diagnosis, support and lived experience of women with polycystic ovary syndrome could be enhanced by better professional recognition of these concerns, improved knowledge and communication about polycystic ovary syndrome and better access to support and specialist advice.
探讨多囊卵巢综合征（PCOS）诊断对健康/疾病身份的影响，以及女性如何体验这一诊断以及她们的健康信念。
多囊卵巢综合征是一种常见且异质性的疾病，引起广泛的不同健康问题。以前对多囊卵巢综合征的研究主要是从医学角度出发，对女性的经历和需求了解较少。
对 32 名年龄在 18 至 45 岁之间的确诊为多囊卵巢综合征的绝经前成年女性（根据 Rotterdam 标准诊断）进行了定性研究，这些女性来自初级和二级保健机构。
对 2013 年至 2015 年期间进行的 11 个焦点小组的转录本进行主题分析。
结果/发现：女性确定了一系列影响个人和生殖身份、健康知识和信念的问题：（1）诊断的延迟和障碍；（2）医疗专业人员普遍缺乏同理心；（3）难以获得专科转诊；（4）专业人员提供的信息有限；（5）药物治疗效果不一致且有时不理想；（6）对生育能力的帮助和建议不足；（7）对长期风险如糖尿病的认识或关注相对较少；（8）多囊卵巢综合征患者的信念与她们对医疗保健专业人员态度的体验之间存在显著差异。
女性的体验和医疗保健专业人员的态度似乎存在分歧。通过更好地认识到这些问题，提高对多囊卵巢综合征的了解和沟通，以及更好地获得支持和专科建议，女性多囊卵巢综合征的诊断、支持和生活体验可能会得到改善。
