Ronen Gabriel M, Rosenbaum Peter L
Department of Pediatrics, McMaster University, 1200 Main Street West, Hamilton, ON, L8S 4K1, Canada.
Curr Neurol Neurosci Rep. 2017 May;17(5):39. doi: 10.1007/s11910-017-0749-7.
Our goals in this reflection are to (i) identify the ethical dimensions inherent in any clinical encounter and (ii) bring to the forefront of our pediatric neurology practice the myriad of opportunities to explore and learn from these ethical questions. We highlight specifically Beauchamp and Childress's principles of biomedical ethics. We use the terms ethics in common clinical practice and an ethical lens to remind people of the ubiquity of ethical situations and the usefulness of using existing ethical principles to analyze and resolve difficult situations in clinical practice. We start with a few common situations with which many of us tend to struggle. We describe what we understand as ethics and how and why developments in technology, novel potential interventions, policies, and societal perspectives challenge us to think about and debate ethical issues. Individual patients are not a singular population; each patient has their own unique life situations, culture, goals, and expectations that need to be considered with a good dose of humanity and humility. We believe that using an ethical lens-by which we mean making an explicit effort to identify and consider these issues openly-will help us to achieve this goal in practice, education, and research.
在这篇反思文章中，我们的目标是：（i）识别任何临床诊疗过程中固有的伦理维度；（ii）将探索并从这些伦理问题中学习的众多机会置于我们儿科神经学实践的前沿。我们特别强调了博尚和奇尔德雷斯的生物医学伦理原则。我们使用“临床实践中的伦理”以及“伦理视角”这些术语，以提醒人们伦理情境无处不在，以及运用现有的伦理原则来分析和解决临床实践中棘手情况的实用性。我们从一些我们许多人往往会感到棘手的常见情况入手。我们描述我们所理解的伦理，以及技术发展、新型潜在干预措施、政策和社会观念如何以及为何促使我们思考和辩论伦理问题。个体患者并非单一群体；每个患者都有其独特的生活境遇、文化、目标和期望，需要带着充分的人文关怀和谦逊态度加以考量。我们相信，运用伦理视角——即明确努力公开识别并思考这些问题——将有助于我们在实践、教育和研究中实现这一目标。
