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患有脊柱裂的年轻男性的性功能与生活质量:这会是临床实践中被忽视的方面吗?

Sexual Function and Quality of Life in Young Men With Spina Bifida: Could It Be Neglected Aspects in Clinical Practice?

作者信息

Choi Eun Kyoung, Ji Yoonhye, Han Sang Won

机构信息

Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, Seoul, Republic of Korea.

Bladder-Urethra Rehabilitation Clinic, Department of Pediatric Urology, Severance Children's Hospital, Yonsei University Health System, Seoul, Republic of Korea.

出版信息

Urology. 2017 Oct;108:225-232. doi: 10.1016/j.urology.2016.11.052. Epub 2017 Mar 31.

Abstract

OBJECTIVE

To evaluate the sexual function of young men with spina bifida and the impact of the disorder on the quality of life (QOL).

MATERIALS AND METHODS

To assess sexual function and QOL by using self-administered questionnaires (International Index of Erectile Function [IIEF] and 36-Item Short Form Health Survey) for young men with spina bifida. We collected data from 47 young men with spina bifida between June 2013 and October 2013 at the spina bifida clinic of Severance Children's Hospital, Seoul, South Korea.

RESULTS

Of the 47 men who completed the IIEF, 24 (51.1%) had sexual intercourse at least once during the previous month, and the patients' sexual activity status had a significant association with their sexual function; however, the status of their sexual activity did not show any differentiation with their QOL scores. Concerning overall satisfaction in sexual activity, about 87% reported more than mild dysfunction; however, 67% and 50% had normal erectile function and orgasmic function, respectively. In 10 patients (41.7%) among them, the frequency of ejaculation problems ranged from "sometimes" to "most of the time" during sexual activity. The correlation between sexual function and QOL had a statistically significant association with the weak correlation (r = 0.496, P = .014).

CONCLUSION

Sexual function should be evaluated routinely in patients with spina bifida because such patients experience sexual dysfunction, although sexual function did not directly show a significant correlation with the QOL in this study.

摘要

目的

评估患有脊柱裂的年轻男性的性功能以及该疾病对生活质量(QOL)的影响。

材料与方法

通过使用自填式问卷(国际勃起功能指数[IIEF]和36项简短健康调查)来评估患有脊柱裂的年轻男性的性功能和生活质量。我们于2013年6月至2013年10月在韩国首尔Severance儿童医院的脊柱裂诊所收集了47名患有脊柱裂的年轻男性的数据。

结果

在完成IIEF的47名男性中,有24名(51.1%)在上个月至少有过一次性交,患者的性活动状况与其性功能有显著关联;然而,他们的性活动状况在生活质量得分方面没有表现出任何差异。关于性活动的总体满意度,约87%的人报告有超过轻度的功能障碍;然而,分别有67%和50%的人勃起功能和性高潮功能正常。其中10名患者(41.7%)在性活动期间射精问题的频率从“有时”到“大部分时间”不等。性功能与生活质量之间的相关性具有统计学意义,呈弱相关(r = 0.496,P = 0.014)。

结论

对于脊柱裂患者应常规评估性功能,因为此类患者存在性功能障碍,尽管在本研究中性功能与生活质量没有直接显示出显著相关性。

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