Pediatrics and Physical Medicine and Rehabilitation, University of Pittsburgh, Pittsburgh, PA, USA.
University of Southern California, Los Angeles, CA, USA.
J Pediatr Rehabil Med. 2020;13(4):611-619. doi: 10.3233/PRM-200743.
Sexual development is not only comprised of the changes to a person's body during puberty; it is a part of social development and should be considered in the context of basic and routine human desires for connectedness and intimacy, beliefs, values and aspirations. As is true for everyone, it is important that individuals with spina bifida have opportunities to acquire developmentally appropriate, relevant and accurate sexual health knowledge. Those with spina bifida need to be able to negotiate sexual desire, intimacy and sexual expression. They also need education about their sexual health and how to limit the negative outcomes of sexual activity related to sexually transmitted infections, unplanned pregnancy or sexual coercion, violence, abuse or exploitation. This article discusses the Spina Bifida Sexual Health and Education Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida using the World Health Organization's framing of sexual health and reviews the literature on sexual health and education for individuals with spina bifida.
性发育不仅包括青春期个体身体的变化；它也是社会发展的一部分，应该结合人类对联系和亲密、信仰、价值观和愿望的基本和常规需求来考虑。与所有人一样，重要的是，患有脊柱裂的个体应该有机会获得发展适当、相关和准确的性健康知识。脊柱裂患者需要能够协商性欲望、亲密关系和性表达。他们还需要接受有关性健康的教育，以及如何限制与性传播感染、意外怀孕或性胁迫、暴力、虐待或剥削相关的性活动的负面后果。本文使用世界卫生组织对性健康的框架，讨论了 2018 年脊柱裂协会第四版《脊柱裂患者护理指南》中的脊柱裂患者性健康和教育医疗保健指南，并回顾了关于脊柱裂患者性健康和教育的文献。
