Wright Stuart J, Ulph Fiona, Dharni Nimarta, Payne Katherine
Manchester Centre for Health Economics, Division of Population Health, Health Services Research and Primary Care, the University of Manchester, Manchester, UK.
Manchester Centre for Health Psychology, Division of Psychology and Mental Health, the University of Manchester, Manchester, UK.
Value Health. 2017 Apr;20(4):651-661. doi: 10.1016/j.jval.2016.11.007. Epub 2017 Jan 3.
The national newborn bloodspot screening programs (NBSPs) are continually expanding to screen for more conditions.
To quantify parents' preferences for information and the way in which this is provided in example NBSPs.
A hybrid choice experiment, combining a conjoint analysis and a discrete choice experiment, was designed. A sample of current and future parents between the ages of 18 and 45 years was identified via an Internet panel. Respondents completed one of two survey versions (9 conditions and 20 conditions) comprising a validated measure of attitudes toward involvement in decision making, 6 CA questions (11 information attributes), 10 DCE questions (4 attributes: 3 process and the ability to make an informed decision), and demographic questions.
Of the 702 respondents who completed the survey, 58% were women, 48% were between 25 and 34 years old, and 48% were current parents. All types of information were identified to statistically significantly improve parents' ability to make a decision. Participants preferred taking an "active" role in decision making. Respondents to the 9-condition survey preferred information before 20 weeks (willingness to pay [WTP] £11.88; CI £5.56 to £19.53) and the 20-condition group after 20 weeks (WTP £15.91; CI £10.64 to £21.63). All respondents disliked receiving information 3 days after birth, with the 20-condition group also being averse to receiving it on day 5 (WTP -£11.20; CI -£18.40 to 5.72). Respondents in both groups preferred to receive their information in an individual discussion.
This study suggests that parents' preferences for receiving NBS information differ from how this information is given in current UK practice.
国家新生儿血斑筛查项目（NBSPs）正在不断扩展，以筛查更多病症。
量化父母对信息的偏好以及在示例NBSPs中提供信息的方式。
设计了一项混合选择实验，结合了联合分析和离散选择实验。通过互联网面板确定了年龄在18至45岁之间的当前和未来父母样本。受访者完成了两个调查版本之一（9种病症和20种病症），其中包括对参与决策态度的有效测量、6个联合分析问题（11个信息属性）、10个离散选择实验问题（4个属性：3个过程和做出明智决策的能力）以及人口统计学问题。
在完成调查的702名受访者中，58%为女性，48%年龄在25至34岁之间，48%为当前父母。所有类型的信息在统计学上均显著提高了父母的决策能力。参与者倾向于在决策中发挥“积极”作用。9种病症调查版本的受访者更喜欢在20周前获得信息（支付意愿[WTP]为11.88英镑；置信区间为5.56英镑至19.53英镑），而20种病症组的受访者更喜欢在20周后获得信息（WTP为15.91英镑；置信区间为10.64英镑至21.63英镑）。所有受访者都不喜欢在出生后3天收到信息，20种病症组的受访者也不愿意在第5天收到信息（WTP为 -11.20英镑；置信区间为 -18.40英镑至5.72英镑）。两组受访者都更喜欢通过个人讨论来获取信息。
本研究表明，父母对接收新生儿筛查信息的偏好与英国当前实践中提供信息的方式不同。
