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痴呆症患者照料者的关系质量与痛苦:一项横断面研究。

Relationship Quality and Distress in Caregivers of Persons With Dementia: A Cross-Sectional Study.

作者信息

Bjørge Heidi, Kvaal Kari, Småstuen Milada Cvancarova, Ulstein Ingun

机构信息

1 Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

2 Faculty of Health, Institute of Nursing and Health Promotion, Oslo and Akershus University College of Applied Sciences, Oslo, Norway.

出版信息

Am J Alzheimers Dis Other Demen. 2017 May;32(3):157-165. doi: 10.1177/1533317517691121. Epub 2017 Jan 1.

Abstract

This cross-sectional study aimed to investigate the relationship between caregivers and care receivers, defined as home-dwelling family members with dementia. We used a self-rating questionnaire, the Felt Expressed Emotion Rating Scale (FEERS; 6 simple questions), to measure caregiver perceptions of the care receiver's criticisms (CCs) and emotional overinvolvement (EOI) toward the caregiver. We performed factor analyses to rank single items on the FEERS pertaining to CC and EOI. We included 208 caregiver/care receiver pairs. Logistic regression analyses tested associations between FEERS items and caregiver and care receiver variables. The main contributors to caregiver perceptions of CC were the caregiver's own distress and the amount of time spent with the care receiver. Socially distressed caregivers perceived the care receiver as emotionally overinvolved. When offering a psychosocial intervention, a tailored program should target the caregiver's perceived relationship with the family member and the caregiver's distress. The program should also endeavor to give the caretaker more opportunities for leisure time.

摘要

这项横断面研究旨在调查照料者与被照料者(定义为居家患有痴呆症的家庭成员)之间的关系。我们使用了一份自评问卷,即情感表达感受评定量表(FEERS;6个简单问题),来衡量照料者对照料接受者针对照料者的批评(CCs)和情感过度卷入(EOI)的看法。我们进行了因子分析,以对FEERS上与CC和EOI相关的单个项目进行排序。我们纳入了208对照料者/被照料者。逻辑回归分析检验了FEERS项目与照料者和被照料者变量之间的关联。照料者对CC看法的主要影响因素是照料者自身的困扰以及与照料接受者相处的时间量。社会困扰的照料者认为照料接受者情感过度卷入。在提供心理社会干预时,一个量身定制的项目应针对照料者所感知的与家庭成员的关系以及照料者的困扰。该项目还应努力为照料者提供更多休闲时间的机会。

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