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中文名称:重大神经认知障碍患者及其照顾者的健康相关生活质量的预测因素:自尊和照顾者负担的作用。

Predictors of the health-related quality of life of Chinese people with major neurocognitive disorders and their caregivers: The roles of self-esteem and caregiver's burden.

机构信息

Department of Social Work, Hong Kong Baptist University, Kowloon Tong, Hong Kong.

Department of Medicine (Geriatric division), Chinese University of Hong Kong, Shatin, Hong Kong.

出版信息

Geriatr Gerontol Int. 2017 Dec;17(12):2319-2328. doi: 10.1111/ggi.13065. Epub 2017 Apr 20.

Abstract

AIM

The present research study aimed to identify and compare the clinical and non-clinical factors that predict the self-reported and proxy-reported health-related quality of life (HRQoL) of people with major neurocognitive disorder (PwND) who are living at home in a Chinese society.

METHODS

A total of 57 Chinese PwND-family caregiver dyads that were using the services of local senior centers were recruited through a cross-sectional survey with convenience sampling. Each PwND and caregiver rated the PwND's HRQoL independently by using the Quality of Life-Alzheimer's disease measure. Additional measures included the Rosenberg Self-Esteem Scale (RSES), Index for Managing Memory Loss, Geriatric Depression Scale, Cornell Scale for Depression in Dementia and Zarit Burden Inventory.

RESULTS

The results of hierarchical multiple linear regression analyses showed that the PwND's self-rated HRQoL and caregiver-rated HRQoL were found to be predicted by different clinical and non-clinical variables. In particular, the self-esteem of PwND had the highest predictive power for the self-rated HRQoL, whereas the caregiver burden is the only significant predictor for the caregiver-rated HRQoL.

CONCLUSIONS

In the present study, the self-esteem of PwND and the caregiver's burden were found to be important factors predicting self-rated HRQoL and caregiver-rated HRQoL respectively, which is probably because of the influence of traditional Chinese cultural values. Thus, it is important for non-pharmacological interventions to address these special needs to promote HRQoL for this population. Geriatr Gerontol Int 2017; 17: 2319-2328.

摘要

目的

本研究旨在识别和比较预测中国社会中居家的主要神经认知障碍患者(PwND)自我报告和代理报告的健康相关生活质量(HRQoL)的临床和非临床因素。

方法

通过横断面调查和方便抽样,共招募了 57 对中国 PwND-家庭照顾者,他们正在使用当地老年人中心的服务。每位 PwND 和照顾者都通过使用生活质量-阿尔茨海默病量表(Quality of Life-Alzheimer's disease measure)独立评估 PwND 的 HRQoL。其他措施包括罗森伯格自尊量表(Rosenberg Self-Esteem Scale,RSES)、记忆管理指数、老年抑郁量表、康奈尔痴呆抑郁量表和 Zarit 负担量表。

结果

分层多元线性回归分析的结果表明,PwND 的自我报告 HRQoL 和照顾者报告 HRQoL 由不同的临床和非临床变量预测。特别是,PwND 的自尊对自我报告的 HRQoL 具有最高的预测力,而照顾者负担是照顾者报告的 HRQoL 的唯一显著预测因子。

结论

在本研究中,PwND 的自尊和照顾者的负担被发现是分别预测自我报告的 HRQoL 和照顾者报告的 HRQoL 的重要因素,这可能是由于中国传统文化价值观的影响。因此,非药物干预措施解决这些特殊需求对于提高该人群的 HRQoL 很重要。老年医学与老年病学国际 2017; 17: 2319-2328。

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