Department of Health Care Sciences, Ersta Sköndal Bräcke University, Sweden; The Palliative Research Centre, Ersta Sköndal University College, Sweden.
Department of Health Care Sciences, Ersta Sköndal Bräcke University, Sweden; The Palliative Research Centre, Ersta Sköndal University College, Sweden; Department of Nursing, Umeå University, Sweden.
Dementia (London). 2019 May;18(4):1354-1372. doi: 10.1177/1471301217706268. Epub 2017 Apr 25.
Agency (individuality) and communion (togetherness) are vital to a positive sense of self. People with Alzheimer's disease are at risk of experiencing diminished agency and decreased communion. Their family members', especially their partner's, view on their agency and communion is also likely to influence their sense of agency, communion, and self. In the present study, individual interviews with 10 people with Alzheimer's disease and their spousal carers were qualitatively analysed to describe how in each couple the two spouses viewed the agency and communion of the person with Alzheimer's disease from an individual perspective. The findings show that the carers generally described the agency of the person with Alzheimer's disease as slightly weaker compared with the persons with Alzheimer's disease themselves. The carers also appeared to have poor knowledge of what supported and threatened the sense of communion of the person with Alzheimer's disease.
个体性和共同性对积极的自我意识至关重要。患有阿尔茨海默病的人面临着个体性减弱和共同性减少的风险。他们的家庭成员，特别是他们的配偶，对他们的个体性和共同性的看法也可能影响他们的个体性、共同性和自我意识。在本研究中，对 10 名患有阿尔茨海默病的患者及其配偶护理者进行了个体访谈，并进行了定性分析，以描述在每对夫妻中，配偶双方如何从个体角度看待患有阿尔茨海默病的人的个体性和共同性。研究结果表明，护理者通常描述说，与阿尔茨海默病患者本人相比，患者的个体性略弱。护理者似乎也不太了解哪些因素支持和威胁着阿尔茨海默病患者的共同性意识。
