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前驱期阿尔茨海默病患者的日常积极生活体验:一项定性研究

Experiences of Active Everyday Life Among Persons with Prodromal Alzheimer's Disease: A Qualitative Study.

作者信息

Fallahpour Mandana, Fritz Heather, Thunborg Charlotta, Akenine Ulrika, Kivipelto Miia

机构信息

Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Stockholm, Sweden.

Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, Karolinska Institutet, Stockholm, Sweden.

出版信息

J Multidiscip Healthc. 2022 Aug 31;15:1921-1932. doi: 10.2147/JMDH.S369878. eCollection 2022.

DOI:10.2147/JMDH.S369878
PMID:36068878
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9441142/
Abstract

INTRODUCTION

Identifying strategies to prevent or delay cognitive decline among the rising numbers of elderly is acknowledged as a global public health priority. Research suggests that an active lifestyle in terms of participation in activities has the potential to reduce the risk of later-life cognitive decline. The concept of "active everyday life", however, needs to be further explored.

AIM

The study aimed to explore and describe the active everyday lives of persons with prodromal Alzheimer's disease (AD) in terms of quality of participation in activities and perceived restrictions.

METHODS

This qualitative study was part of a larger project, the MIND-AD trial. Nine in-depth interviews were conducted with seven participants (2 males, 5 females; mean age of 72.3) at baseline before the intervention. The data were collected from January to October 2018 and analyzed using the grounded theory approach.

RESULTS

Four categories emerged from the analysis: (i) active body and mind; (ii) doing desired meaningful activities to feel engaged, contented, and satisfied; (iii) doing in the context of being connected to others; (iv) ability in making decisions and taking actions. From these categories, which presented the key elements of an active everyday life, a core category was identified: Living a complete life in flow.

CONCLUSION

The findings suggest key elements of participation quality that contribute to an active life. The identified elements are important to be considered in rehabilitation to provide opportunities and possibilities for participation to enable and improve the quality of participation among persons with cognitive impairments.

摘要

引言

随着老年人数量的不断增加,确定预防或延缓认知衰退的策略已被公认为全球公共卫生的优先事项。研究表明,积极参与活动的生活方式有可能降低晚年认知衰退的风险。然而,“积极的日常生活”这一概念需要进一步探讨。

目的

本研究旨在从活动参与质量和感知限制方面探索和描述前驱性阿尔茨海默病(AD)患者的积极日常生活。

方法

这项定性研究是一个更大项目——MIND-AD试验的一部分。在干预前的基线阶段,对7名参与者(2名男性,5名女性;平均年龄72.3岁)进行了9次深入访谈。数据收集于2018年1月至10月,并采用扎根理论方法进行分析。

结果

分析得出了四个类别:(i)身心活跃;(ii)从事期望的有意义活动以感到投入、满足和满意;(iii)在与他人建立联系的背景下进行活动;(iv)决策和采取行动的能力。从这些呈现积极日常生活关键要素的类别中,确定了一个核心类别:在流畅中过完整的生活。

结论

研究结果表明了有助于积极生活的参与质量的关键要素。在康复过程中考虑这些确定的要素很重要,以便为认知障碍患者提供参与的机会和可能性,从而促进并提高其参与质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3f07/9441142/2a73956d338c/JMDH-15-1921-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3f07/9441142/2a73956d338c/JMDH-15-1921-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3f07/9441142/2a73956d338c/JMDH-15-1921-g0001.jpg

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Arch Gerontol Geriatr. 2022 Mar-Apr;99:104606. doi: 10.1016/j.archger.2021.104606. Epub 2021 Dec 5.
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J Nutr Health Aging. 2021;25(9):1070-1075. doi: 10.1007/s12603-021-1674-7.
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