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急性淋巴细胞白血病小儿患者父母在治疗结束2个月后的经历

The Experiences of Parents of Pediatric Patients With Acute Lymphoblastic Leukemia, 2 Months After Completion of Treatment.

作者信息

Muskat Barbara, Jones Heather, Lucchetta Sonia, Shama Wendy, Zupanec Sue, Greenblatt Andrea

机构信息

1 Hospital for Sick Children, Toronto, Ontario, Canada.

出版信息

J Pediatr Oncol Nurs. 2017 Sep/Oct;34(5):358-366. doi: 10.1177/1043454217703594. Epub 2017 Apr 26.

Abstract

Diagnosis and treatment of childhood acute lymphoblastic leukemia (ALL) can be a highly stressful time for the entire family. While completion of treatment may bring relief to some families, it may also bring about additional anxieties and fear. The primary objective of this article is to present an analysis of the experiences, emotional states, and support needs of parents of pediatric cancer patients 2 months after treatment completion for ALL. Using a qualitative interpretive description approach, transcripts from interviews with 17 parents from the leukemia/lymphoma program of a large urban pediatric cancer center were analyzed using N-Vivo 10 data analysis software. Parents reported simultaneous feelings of relief and apprehension, changing relationships with their health care team and the experience of returning to a life following treatment. Results highlight the need for support for parents on completion of treatment.

摘要

儿童急性淋巴细胞白血病(ALL)的诊断和治疗对整个家庭来说可能是一段压力极大的时期。虽然治疗的完成可能会让一些家庭松一口气,但也可能带来额外的焦虑和恐惧。本文的主要目的是分析小儿癌症患者的父母在完成ALL治疗两个月后的经历、情绪状态和支持需求。采用定性解释性描述方法,使用N-Vivo 10数据分析软件对来自一个大型城市小儿癌症中心白血病/淋巴瘤项目的17位家长的访谈记录进行了分析。家长们报告了如释重负和担忧的同时出现的感受、与医疗团队关系的变化以及治疗后回归生活的经历。结果凸显了在治疗完成后为家长提供支持的必要性。

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