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《如履薄冰:青少年癌症治疗结束后父母的第一年》[公式:见正文]。

Walking on Eggshells: Parents' First Year After Their Adolescent Completes Their Cancer Treatment [Formula: see text].

机构信息

University of Washington, Seattle, WA, USA.

Seattle Children's Hospital, Seattle, WA, USA.

出版信息

J Pediatr Oncol Nurs. 2020 Jul/Aug;37(4):233-243. doi: 10.1177/1043454220909788. Epub 2020 Mar 6.

Abstract

Despite an awareness that parents experience distress and heightened uncertainty at the end of their adolescent's treatment for cancer, little is known about the specific challenges and concerns parents hold for their adolescent survivors or how they manage these challenges. This study described challenges parents experience in the first year after their adolescent's cancer treatment and what parents did to manage those challenges. Single occasion semistructured interviews were conducted with parents and were transcribed verbatim. Data were coded using inductive content analysis methods adapted from grounded theory. Participants were 30 parents of adolescent survivors (13-18 years) who were in the first year following treatment completion. The core construct, "Walking on Eggshells," explained the processes and experiences parents faced once treatment was complete. Two additional domains captured how parents managed posttreatment challenges ("Doing What We Can") and the ways parents helped their adolescents adjust ("Balancing"). Study results suggest that services and materials are needed to help parents know common struggles that arise after treatment and ways to mitigate the severity of distress parents experience.

摘要

尽管人们意识到父母在青少年癌症治疗结束时会感到痛苦和高度不确定,但对于父母对青少年幸存者的具体挑战和关注点,以及他们如何应对这些挑战,知之甚少。本研究描述了父母在青少年癌症治疗结束后的第一年所经历的挑战,以及他们如何应对这些挑战。对父母进行了单次半结构化访谈,并逐字记录。使用源自扎根理论的归纳内容分析方法对数据进行编码。参与者为 30 名青少年幸存者(13-18 岁)的父母,他们处于治疗完成后的第一年。核心结构“如履薄冰”解释了父母在治疗完成后面临的过程和体验。另外两个领域描述了父母如何管理治疗后的挑战(“尽我们所能”)以及帮助青少年适应的方式(“平衡”)。研究结果表明,需要提供服务和材料,以帮助父母了解治疗后常见的困难以及减轻父母所经历的痛苦程度的方法。

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Walking on Eggshells: Parents' First Year After Their Adolescent Completes Their Cancer Treatment [Formula: see text].
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