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儿童心室辅助装置项目的发展历程:波士顿儿童医院的经验

The Evolution of a Pediatric Ventricular Assist Device Program: The Boston Children's Hospital Experience.

作者信息

Hawkins Beth, Fynn-Thompson Francis, Daly Kevin P, Corf Michelle, Blume Elizabeth, Connor Jean, Porter Courtney, Almond Christopher, VanderPluym Christina

机构信息

Department of Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA.

Department of Cardiovascular Surgery, Boston Children's Hospital, Boston, MA, USA.

出版信息

Pediatr Cardiol. 2017 Jun;38(5):1032-1041. doi: 10.1007/s00246-017-1615-8. Epub 2017 Apr 29.

Abstract

Mechanical circulatory support in the form of ventricular assist devices (VADs) in children has undergone rapid growth in the last decade. With expansion of device options available for larger children and adolescents, the field of outpatient VAD support has flourished, with many programs unprepared for the clinical, programmatic, and administrative responsibilities. From preimplantation VAD evaluation and patient education to postimplant VAD management, the VAD program, staffed with an interdisciplinary team, is essential to providing safe, effective, and sustainable care for a new technology in an exceedingly complex patient population. Herein, this paper describes the Boston Children's Hospital VAD experience over a decade and important lessons learned from developing a pediatric program focusing on a high-risk but low-volume population. We highlight the paramount role of the VAD coordinator, clinical infrastructure requirements, as well as innovation in care spanning inpatient and outpatient VAD supports at Boston Children's Hospital.

摘要

在过去十年中,儿童心室辅助装置(VAD)形式的机械循环支持发展迅速。随着适用于较大儿童和青少年的装置选择不断增加,门诊VAD支持领域蓬勃发展,许多项目对临床、项目和管理职责毫无准备。从植入前VAD评估和患者教育到植入后VAD管理,由跨学科团队组成的VAD项目对于在极其复杂的患者群体中为这项新技术提供安全、有效和可持续的护理至关重要。在此,本文描述了波士顿儿童医院十年来的VAD经验,以及从针对高危但低容量人群开展儿科项目中学到的重要经验教训。我们强调了VAD协调员的首要作用、临床基础设施要求,以及波士顿儿童医院在住院和门诊VAD支持方面护理创新。

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