视力障碍儿童和青少年（PAI-CY）及年轻人（PAI-YA）参与和活动量表的可行性：一项试点研究。
Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study.
作者信息
Elsman Ellen Bernadette Maria, van Nispen Ruth Marie Antoinette, van Rens Gerardus Hermanus Maria Bartholomeus
机构信息
Department of Ophthalmology, VU University Medical Centre and the Amsterdam Public Health research institute, PO Box 7057, 1007 MB, Amsterdam, The Netherlands.
Department of Ophthalmology, Elkerliek Hospital, Wesselmanlaan 25, 5707 HA, Helmond, The Netherlands.
出版信息
Health Qual Life Outcomes. 2017 May 11;15(1):98. doi: 10.1186/s12955-017-0677-x.
BACKGROUND
Having a visual impairment affects quality of life, daily functioning and participation. To assess rehabilitation needs of visually impaired children and young adults, the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) were developed. The PAI-CY comprises four questionnaires for different age categories: 0-2 years, 3-6 years, 7-12 years and 13-17 years. This pilot study assesses the feasibility and acceptability of the PAI-CY and PAI-YA, and the relevance of the content of the questionnaires.
METHODS
In addition to the regular admission procedure, the PAI-CY and PAI-YA were completed by 30 participants (six per questionnaire). For the PAI-CY, parents completed the questionnaire online prior to admission. From age 7 years onwards, children completed the questionnaire face-to-face with a rehabilitation professional during the admission procedure. Young adults completed the PAI-YA online. Subsequently, participants and professionals administered an evaluation form.
RESULTS
Overall, 85% of the parents rated all aspects of the PAI-CY neutral to positive, whereas 100% of all children and young adults were neutral to positive on all aspects, except for the duration to complete. The main criticism of professionals was that they were unable to identify actual rehabilitation needs using the questionnaires. Minor adjustments were recommended for the content of questions.
CONCLUSIONS
Parents, children and young adults were mostly satisfied with the questionnaires, however, professionals suggested some changes. The adaptations made should improve satisfaction with content, clarification of questions, and satisfaction with the questionnaires in compiling a rehabilitation plan. Although face and content validity has been optimized, a larger field study is taking place to further develop and evaluate the questionnaires.
背景
视力障碍会影响生活质量、日常功能和参与度。为评估视力障碍儿童和青少年的康复需求，开发了儿童及青少年参与和活动量表（PAI-CY）以及青少年参与和活动量表（PAI-YA）。PAI-CY包括针对不同年龄类别的四份问卷：0 - 2岁、3 - 6岁、7 - 12岁和13 - 17岁。这项试点研究评估了PAI-CY和PAI-YA的可行性和可接受性，以及问卷内容的相关性。
方法
除常规入院程序外，30名参与者（每份问卷6人）完成了PAI-CY和PAI-YA。对于PAI-CY，家长在入院前在线完成问卷。从7岁起，儿童在入院程序中与康复专业人员面对面完成问卷。青少年在线完成PAI-YA。随后，参与者和专业人员填写了一份评估表。
结果
总体而言，85%的家长对PAI-CY的所有方面评价为中性到积极，而所有儿童和青少年中，除完成时间外，100%对所有方面评价为中性到积极。专业人员的主要批评是，他们无法通过问卷确定实际的康复需求。建议对问题内容进行一些小调整。
结论
家长、儿童和青少年对问卷大多感到满意，然而，专业人员提出了一些改进建议。所做的调整应能提高对内容的满意度、问题的清晰度以及在编制康复计划时对问卷的满意度。尽管表面效度和内容效度已得到优化，但正在进行一项更大规模的实地研究，以进一步开发和评估这些问卷。
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