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视力或运动障碍青少年参与休闲活动的质性研究。

Participation of teenagers with vision or motor impairments in leisure activities: a qualitative study.

作者信息

Veldhorst Carlijn, Wijnen Marjolein, Kef Sabina, Vervloed Mathijs P J, Steenbergen Bert

机构信息

Behavioural Science Institute, Radboud University, Nijmegen, Netherlands.

De Kleine Prins Onderwijsgroep, Utrecht, Netherlands.

出版信息

Front Rehabil Sci. 2024 Nov 25;5:1444901. doi: 10.3389/fresc.2024.1444901. eCollection 2024.

DOI:10.3389/fresc.2024.1444901
PMID:39655184
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11625804/
Abstract

PURPOSE

Participation in everyday life activities is important for the development of children and is an important topic in rehabilitation practices. This qualitative study aimed to unveil the perspectives and experiences of teenagers with vision impairments (VIs) or motor impairments (MIs) regarding their participation in leisure activities.

MATERIALS AND METHODS

13 teenagers with VIs and 12 teenagers with MIs (age range: 11-15 years) participated in this study. Data were collected using semi-structured interviews. Verbatim transcripts were analyzed following the steps of the phenomenological approach.

RESULTS

A total of 623 significant statements were identified and assigned to 221 meaning units. Finally, 13 themes emerged. Teenagers with VIs and MIs shared many experiences and perspectives regarding participation in leisure activities.

CONCLUSIONS

Teenagers reported that they can sufficiently indicate what they experience as pleasant and sufficient considering their participation, as well as the challenges they encountered, such as their impairment, limited transport possibilities, or concerns from parents. Overall, teenagers with VIs or MIs were generally satisfied with the degree and frequency of their participation in leisure activities and felt sufficiently involved.

摘要

目的

参与日常生活活动对儿童的发展很重要,也是康复实践中的一个重要课题。这项定性研究旨在揭示视力障碍(VI)或运动障碍(MI)青少年在参与休闲活动方面的观点和经历。

材料与方法

13名视力障碍青少年和12名运动障碍青少年(年龄范围:11 - 15岁)参与了本研究。通过半结构化访谈收集数据。按照现象学方法的步骤对逐字记录进行分析。

结果

共识别出623条重要陈述,并将其归为221个意义单元。最终形成了13个主题。视力障碍和运动障碍青少年在参与休闲活动方面分享了许多经历和观点。

结论

青少年报告称,他们能够充分表明在参与活动时所体验到的愉悦和满足,以及所遇到的挑战,如自身障碍、交通不便或父母的担忧。总体而言,视力障碍或运动障碍青少年对其参与休闲活动的程度和频率普遍感到满意,并觉得自己充分融入其中。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78c7/11625804/e1c6f6a4ac01/fresc-05-1444901-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78c7/11625804/e1c6f6a4ac01/fresc-05-1444901-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78c7/11625804/e1c6f6a4ac01/fresc-05-1444901-g001.jpg

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Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals.探索参与儿科康复的障碍:残疾儿童和青少年、家长和专业人士的声音。
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Robotic devices for paediatric rehabilitation: a review of design features.
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Biomed Eng Online. 2021 Sep 6;20(1):89. doi: 10.1186/s12938-021-00920-5.
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Interrater reliability and agreement between children with visual impairment and their parents on participation and quality of life.视障儿童与其父母在参与和生活质量方面的评定者间信度和一致性。
Acta Ophthalmol. 2022 Jun;100(4):468-476. doi: 10.1111/aos.14999. Epub 2021 Aug 17.
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Quality of Life and Participation of Children With Visual Impairment: Comparison With Population Reference Scores.视障儿童的生活质量和参与度:与人口参考分数的比较。
Invest Ophthalmol Vis Sci. 2021 Jun 1;62(7):14. doi: 10.1167/iovs.62.7.14.
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Towards a paradigm shift in pediatric rehabilitation: accelerating the uptake of evidence on participation into routine clinical practice.迈向儿科康复范式转变:加速参与证据在常规临床实践中的应用。
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