Slomka Jacquelyn, Prince-Paul Maryjo, Webel Allison, Daly Barbara J
J Assoc Nurses AIDS Care. 2017 Jul-Aug;28(4):603-611. doi: 10.1016/j.jana.2017.04.003. Epub 2017 Apr 12.
People living with HIV (PLWH) experience an increase in chronic conditions with aging, but little is known about experiences of living with multimorbidity with HIV. Because early palliative care services may improve well-being for individuals with multimorbidity, we planned to test an intervention to provide these services to community-dwelling PLWH with other chronic conditions. To tailor our intervention to the target population, we conducted four focus groups (n = 22) that elicited health-related needs, experiences, and views regarding palliative and other health services. We identified four themes related to patients' needs and experiences: views of HIV as background to other chronic conditions, challenges managing medications and provider interactions, concerns about coping with future health needs, and persistence of HIV stigma. In addressing multimorbidity with HIV, providers and patients may benefit from enhanced attention to communication when crossing specialty areas and from additional support to decrease stressors associated with HIV stigma.
艾滋病毒感染者(PLWH)随着年龄增长,慢性病发病率上升,但对于感染艾滋病毒且患有多种疾病的生活经历知之甚少。由于早期姑息治疗服务可能改善患有多种疾病者的健康状况,我们计划测试一项干预措施,为患有其他慢性病的社区居住艾滋病毒感染者提供这些服务。为使我们的干预措施适合目标人群,我们开展了四个焦点小组(n = 22),以了解与姑息治疗及其他健康服务相关的健康需求、经历和观点。我们确定了与患者需求和经历相关的四个主题:将艾滋病毒视为其他慢性病背景的观点、药物管理和与医疗服务提供者互动方面的挑战、应对未来健康需求的担忧以及艾滋病毒污名的持续存在。在应对艾滋病毒合并多种疾病时,医疗服务提供者和患者可能会受益于在跨专业领域时加强沟通,并受益于额外支持以减少与艾滋病毒污名相关的压力源。