为父亲们提供有关新生儿筛查和剩余干血斑的教育。
Education for fathers about newborn screening and leftover dried blood spots.
作者信息
Rothwell Erin, Wong Bob, Johnson Erin, Botkin Jeffrey R
机构信息
University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
出版信息
J Community Genet. 2017 Jul;8(3):239-241. doi: 10.1007/s12687-017-0305-9. Epub 2017 May 16.
Abstract
The purpose of this research was to assess the impact of an educational intervention on paternal knowledge, attitudes, and support about newborn screening (NBS) and dried blood spots (DBS). Participants (n = 147) were randomized into one of two groups. The results from this study indicated that video education tools about NBS and DBS is associated with significantly increased knowledge, support, and satisfaction for both NBS and research use of DBS and an opt-out consent approach for DBS among fathers.
摘要
本研究的目的是评估一项教育干预措施对父亲关于新生儿筛查（NBS）和干血斑（DBS）的知识、态度及支持的影响。参与者（n = 147）被随机分为两组。本研究结果表明，关于NBS和DBS的视频教育工具与父亲对NBS及DBS研究用途的知识显著增加、支持度及满意度提高以及DBS的退出同意方式有关。
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本文引用的文献
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The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.教育对公众对新生儿筛查干血斑残留样本的信任及同意偏好的影响
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2
Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.针对父母的新生儿筛查及残留干血斑产前教育：一项随机临床试验。
JAMA Pediatr. 2016 Jun 1;170(6):543-9. doi: 10.1001/jamapediatrics.2015.4850.
3
What parents want to know about the storage and use of residual newborn bloodspots.父母想了解的关于新生儿残余血斑储存和使用的信息。
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Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts.有效新生儿筛查沟通的建议：与家长、医护人员及专家的焦点小组讨论结果
Pediatrics. 2006 May;117(5 Pt 2):S326-40. doi: 10.1542/peds.2005-2633M.
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Web surveys: a review of issues and approaches.网络调查：问题与方法综述
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