Barrington Clare, Kerrigan Deanna, Ureña Francisco I Cáceres, Brudney Karen
a Health Behavior, Gillings School of Global Public Health , University of North Carolina , Chapel Hill , USA.
b Health, Behavior and Society, Bloomberg School of Public Health , John Hopkins University , Baltimore , USA.
Cult Health Sex. 2018 Jan;20(1):40-54. doi: 10.1080/13691058.2017.1323350. Epub 2017 May 18.
In this study, we explore how individuals living with HIV in the Dominican Republic strive to live a 'normal' life and the consequences of this pursuit of normalcy. We conducted qualitative in-depth interviews with men (n = 20) and women (n = 20) living with HIV and receiving care at two urban clinics in Santo Domingo. We analysed the data using a combination of narrative analysis and thematic coding. We aimed to identify how fears and/or lived experiences with social rejection and HIV-related stigma and discrimination shaped participants' abilities to maintain social relationships, be economically productive and manage HIV within the context of sexual relationships. Participants used the discourse of una vida normal (a normal life) to frame their response to HIV. This pursuit of normality was driven by the social and economic pressures of living with a chronic condition in a context of HIV-related stigma; trying to keep things 'normal' further added to these pressures. We argue that the normal life discourse fails to recognise the dynamic and complex nature of negotiating this condition and may also create additional burdens for individuals living with HIV that could impact their wellbeing and preventive behaviours.
在本研究中,我们探讨了多米尼加共和国的艾滋病毒感染者如何努力过上“正常”生活以及这种追求正常生活的后果。我们对在圣多明各两家城市诊所接受治疗的20名艾滋病毒感染男性和20名艾滋病毒感染女性进行了定性深入访谈。我们结合叙事分析和主题编码对数据进行了分析。我们旨在确定恐惧和/或与社会排斥以及与艾滋病毒相关的耻辱和歧视相关的生活经历如何在性关系背景下影响参与者维持社会关系、从事经济生产以及管理艾滋病毒的能力。参与者使用“正常生活”的话语来阐述他们对艾滋病毒的应对方式。在与艾滋病毒相关的耻辱背景下,患有慢性疾病所带来的社会和经济压力推动了这种对正常生活的追求;试图让一切保持“正常”又进一步加剧了这些压力。我们认为,正常生活话语未能认识到应对这种状况的动态和复杂本质,还可能给艾滋病毒感染者带来额外负担,进而影响他们的幸福感和预防行为。