Section of Gastroenterology and Hepatology, Department of Medicine, Michael E. DeBakey VA Medical Center, Baylor College of Medicine, Houston, Texas.
Menninger Department of Psychiatry and Behavioral Sciences, Michael E. DeBakey VA Medical Center, Baylor College of Medicine, Houston, Texas; Houston VA Health Services Research & Development Center of Excellence, Michael E. DeBakey VA Medical Center, Baylor College of Medicine, Houston, Texas; VA South Central Mental Illness Research, Education and Clinical Center, Houston, Texas.
Clin Gastroenterol Hepatol. 2018 Jan;16(1):7-15. doi: 10.1016/j.cgh.2017.05.020. Epub 2017 May 18.
Inflammatory bowel disease (IBD) is a chronic condition that has a relapsing and remitting disease course. There is high degree of inpatient and outpatient health care utilization by IBD patients along with a great deal of psychosocial stress associated with the condition. Patients frequently rely on family, friends, and other informal caregivers to provide medical, instrumental, and emotional support. The role of caregiving for adult IBD patients can lead to significant caregiver burden. At present, there are limited data on the existence of caregiver burden in adult IBD patients. Moreover, there are no specific measures for evaluating caregiver burden and there are no interventions targeting caregiver burden in adults with IBD. This review outlines the limited available data on caregiver burden in IBD, explores caregiver burden in other chronic conditions, and proposes applications of these data for creating screening and assessment tools and interventions for caregiver burden in IBD.
炎症性肠病（IBD）是一种慢性疾病，具有反复发作和缓解的病程。IBD 患者需要大量的住院和门诊医疗保健服务，并且与该疾病相关的心理社会压力很大。患者经常依靠家人、朋友和其他非正式照顾者来提供医疗、器械和情感支持。照顾成年 IBD 患者的角色可能会导致照顾者负担过重。目前，关于成年 IBD 患者照顾者负担的存在的数据有限。此外，目前还没有专门用于评估照顾者负担的措施，也没有针对 IBD 成年患者照顾者负担的干预措施。本综述概述了 IBD 中照顾者负担的有限可用数据，探讨了其他慢性疾病中的照顾者负担，并提出了将这些数据应用于创建 IBD 中照顾者负担的筛查和评估工具和干预措施的建议。
