Mohsenizadeh Seyed Mostafa, Manzari Zahra Sadat, Vosoghinia Hasan, Ebrahimipour Hossein
Department of Medical Surgical Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.
Department of Medical-Surgical Nursing, Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.
J Educ Health Promot. 2020 Oct 30;9:289. doi: 10.4103/jehp.jehp_233_20. eCollection 2020.
Inflammatory bowel disease (IBD), including Crohn's and ulcerative colitis diseases, is characterized by clinical periods of remission and relapse. Excessive care stress can have long-term negative physical and psychological consequences not only for caregivers but also for the recipients of care. This integrative review aims to identify, describe, and synthesize the results of current available research focused on the burdens of IBDs on family caregiver. An integrative review was performed using Whittemore and Knafl methodology. A systematic search of electronic databases including Web of Science, PubMed, Embase, and Scopus from January 2000 to October 2019 was conducted. Articles were included if published in English and focus on IBD burden on family caregivers. Of 730 records, 16 articles with quantitative, qualitative, and Q methodology study designs were eventually included in the review. The synthesis of these articles led to the identification of four key types of effects: biopsychosocial, daily life activities, physical health, and financial. The chronic and relapsing nature of IBD exposes family caregivers to considerable risk. Thus, the care burden of IBD patients' caregivers needs to be evaluated continuously and relieved through family-centered interventions.
炎症性肠病（IBD），包括克罗恩病和溃疡性结肠炎，其特点是存在临床缓解期和复发期。过度的护理压力不仅会给护理人员带来长期负面的生理和心理影响，对接受护理者同样如此。本整合性综述旨在识别、描述并综合当前关于炎症性肠病给家庭护理人员带来负担的现有研究结果。采用惠特莫尔和克纳夫的方法进行了整合性综述。对2000年1月至2019年10月期间包括科学网、PubMed、Embase和Scopus在内的电子数据库进行了系统检索。如果文章以英文发表且聚焦于炎症性肠病给家庭护理人员带来的负担，则纳入其中。在730条记录中，最终有16篇采用定量、定性和Q方法研究设计的文章被纳入该综述。这些文章的综合分析确定了四种关键影响类型：生物心理社会、日常生活活动、身体健康和经济方面。炎症性肠病的慢性和复发性使家庭护理人员面临相当大的风险。因此，需要持续评估炎症性肠病患者护理人员的护理负担，并通过以家庭为中心的干预措施予以减轻。
