Laporte Uribe Franziska, Wolf-Ostermann Karin, Wübbeler Markus, Holle Bernhard
1 German Center for Neurodegenerative Diseases, Witten, Germany.
2 University of Bremen, Germany.
J Aging Health. 2018 Jul;30(6):882-903. doi: 10.1177/0898264317696778. Epub 2017 Mar 15.
This study was conducted to describe care arrangements for persons with dementia (PwDs) who are living at home with the support of a dementia care network (DCN).
Data on the utilization of formal and informal support were collected in face-to-face interviews at baseline and 1-year follow-up with PwDs and caregivers receiving support from 1 of 13 DCNs.
Men with dementia were supported by twice as many informal caregivers as women (2 vs. 1, respectively, p < .001). Regional differences were found in home-care nursing services, social care groups, companion home services, and day care. The care situations were considered stable by most caregivers.
DCNs appear to contribute to a high degree of perceived stability in care situations. Future research should investigate possible gender differences in informal support networks. DCNs should continue their efforts in making low-threshold services in rural areas available and accessible.
本研究旨在描述在痴呆症护理网络（DCN）支持下居家生活的痴呆症患者（PwDs）的护理安排。
在基线和1年随访时，对来自13个DCN中的1个的PwDs及其接受支持的照料者进行面对面访谈，收集有关正式和非正式支持利用情况的数据。
患有痴呆症的男性得到的非正式照料者数量是女性的两倍（分别为2名和1名，p <.001）。在家庭护理服务、社会护理小组、陪伴家庭服务和日托方面发现了地区差异。大多数照料者认为护理情况稳定。
DCN似乎在很大程度上有助于护理情况的高度稳定性。未来的研究应调查非正式支持网络中可能存在的性别差异。DCN应继续努力，使农村地区的低门槛服务能够提供并可获得。
