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银屑病患者的述情障碍、疾病感知和自我管理能力

Alexithymia, Illness Perception and Self-management Competency in Psoriasis.

机构信息

Department of Health Sciences, Institute of Health and Society, Medical Faculty, University of Oslo, Oslo, Norway.

出版信息

Acta Derm Venereol. 2017 Aug 31;97(8):934-940. doi: 10.2340/00015555-2707.

Abstract

Alexithymia, defined as difficulty in describing or recognizing emotions, has been shown to be connected with psoriasis, but its relationship with self-management of psoriasis has not been explored. The aim of this study was to assess the frequency of alexithymia and its relationship with self-management and illness perception in the context of psoriasis. A total of 163 patients participating in 3 weeks of climate heliotherapy (CHT) at Gran Canaria were assessed for alexithymia using the Toronto Alexithymia Scale (TAS-20) at baseline. Self-reported measures for self-management (Health Education Impact Questionnaire; heiQ), and disease severity and illness perception (Brief Illness Perception Questionnaire; BIPQ) were assessed twice. Of all patients, 14.1% were characterized as alexithymic and 22.1% scored in the intermediate range. Alexithymic patients scored significantly worse in all heiQ domains, and reported worse illness perception. However, there were no between-group differences in heiQ or BIPQ change from baseline to after CHT. In conclusion, this study shows that alexithymia indicates inferior self-management and reaffirms the associations with illness perception. Further research is required into these relationships.

摘要

述情障碍,定义为难以描述或识别情绪,已被证明与银屑病有关,但它与银屑病的自我管理之间的关系尚未得到探索。本研究旨在评估述情障碍的频率及其与银屑病自我管理和疾病认知的关系。共有 163 名患者在大加那利岛接受 3 周的气候光疗(CHT),在基线时使用多伦多述情障碍量表(TAS-20)评估述情障碍。两次评估自我管理(健康教育影响问卷;heiQ)、疾病严重程度和疾病认知(简短疾病认知问卷;BIPQ)的自我报告测量。在所有患者中,14.1%的患者表现为述情障碍,22.1%的患者处于中间范围。述情障碍患者在 heiQ 的所有领域得分明显较差,并且报告了更差的疾病认知。然而,从基线到 CHT 后,heiQ 或 BIPQ 的变化在两组之间没有差异。总之,本研究表明述情障碍表明自我管理能力较差,并再次证实了与疾病认知的关联。需要进一步研究这些关系。

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