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[Consensus of Chinese expert on the diagnosis and treatment of hemophilia (version 2017)].《中国血友病诊断与治疗专家共识（2017年版）》
Zhonghua Xue Ye Xue Za Zhi. 2017 May 14;38(5):364-370. doi: 10.3760/cma.j.issn.0253-2727.2017.05.002.
2
[Chinese guidelines on the treatment of hemophilia (version 2020)].[中国血友病治疗指南（2020年版）]
Zhonghua Xue Ye Xue Za Zhi. 2020 Apr 14;41(4):265-271. doi: 10.3760/cma.j.issn.0253-2727.2020.04.001.
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[Chinese expert consensus on the diagnosis and treatment of acquired hemophilia A].《获得性血友病A诊断与治疗中国专家共识》
Zhonghua Xue Ye Xue Za Zhi. 2014 Jun;35(6):575-6. doi: 10.3760/cma.j.issn.0253-2727.2014.06.026.
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[The RFLPs of St14/Taq I in Chinese and its application to gene analysis and prenatal diagnosis of hemophilia A].
Yi Chuan Xue Bao. 1989;16(4):325-30.
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[Consensus of Chinese experts on diagnosis and treatment of hemophilia].《中国血友病诊断与治疗专家共识》
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Molecular diagnosis of hemophilia A in Chinese patients by an analysis of inversions in the factor VIII gene.通过分析凝血因子 VIII 基因倒位对中国患者进行甲型血友病的分子诊断。
Hematopathol Mol Hematol. 1996;10(1-2):63-7.
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Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China.在中国农村和城市地区，对患有血友病的男孩进行 CHO-KLAT 的跨文化适应性调整。
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Classical hemophilia in a Filipino.
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Analysis of the current situation and influencing factors of home treatment for children with hemophilia in China.中国血友病患儿家庭治疗的现状及影响因素分析
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Assessing the health-state utility values of rare disease-hemophilia B using EQ-5D-5L: a study based on the Chinese population.使用EQ-5D-5L评估罕见病——乙型血友病的健康状态效用值：一项基于中国人群的研究。
Orphanet J Rare Dis. 2025 Aug 7;20(1):407. doi: 10.1186/s13023-025-03894-y.
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The effect of prophylactic FVIII infusion combined with personalized rehabilitation on joint health and quality of life in children with hemophilia.预防性输注凝血因子VIII联合个性化康复对血友病儿童关节健康和生活质量的影响。
Front Pediatr. 2025 Jul 10;13:1578617. doi: 10.3389/fped.2025.1578617. eCollection 2025.
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Disease Burden and Treatment Patterns Amongst Patients with Haemophilia A in China: A Retrospective Database Analysis Study.中国甲型血友病患者的疾病负担与治疗模式：一项回顾性数据库分析研究
Adv Ther. 2025 Jun 4. doi: 10.1007/s12325-025-03151-5.
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Analysis of the current status and characteristics of osteoporosis in adult hemophilia patients based on high-resolution peripheral quantitative computed tomography: a case control study.基于高分辨率外周定量计算机断层扫描分析成年血友病患者骨质疏松的现状及特征：一项病例对照研究
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Pharmacokinetic parameter driven outcomes model predicts a reduction in bleeding events associated with BAY 81-8973 versus antihemophilic factor (recombinant) plasma/albumin-free method in a Chinese healthcare setting.药代动力学参数驱动的结局模型预测，与抗血友病因子（重组）血浆/白蛋白游离方法相比，BAY 81-8973 在中国医疗环境中可减少出血事件。
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本文引用的文献

1
A Randomized Trial of Factor VIII and Neutralizing Antibodies in Hemophilia A.A 随机对照试验VIII 因子和中和抗体在血友病 A.
N Engl J Med. 2016 May 26;374(21):2054-64. doi: 10.1056/NEJMoa1516437.
2
When and how to start prophylaxis in boys with severe hemophilia without inhibitors: communication from the SSC of the ISTH.重度血友病无抑制物男孩预防性治疗的起始时间及方式：来自国际血栓与止血学会（ISTH）科学与标准化委员会的沟通
J Thromb Haemost. 2016 May;14(5):1105-9. doi: 10.1111/jth.13298. Epub 2016 Apr 4.
3
Tailoring hemostatic therapies to lower inhibitor development in previously untreated patients with severe hemophilia A.根据患者具体情况调整止血治疗方案，以降低既往未接受治疗的重度 A 型血友病患者的抑制剂产生风险。
J Thromb Haemost. 2016 Jul;14(7):1330-6. doi: 10.1111/jth.13356. Epub 2016 Jun 22.
4
Low-dose prophylaxis for severe haemophilia: a little goes a long way.重度血友病的低剂量预防治疗：小剂量却效果显著。
Haemophilia. 2016 May;22(3):331-3. doi: 10.1111/hae.12853. Epub 2015 Nov 27.
5
Low-dose tertiary prophylactic therapy reduces total number of bleeds and improves the ability to perform activities of daily living in adults with severe haemophilia A: a single-centre experience from Beijing.低剂量三级预防治疗可减少重度甲型血友病成人的出血总数，并提高其日常生活活动能力：来自北京的单中心经验
Blood Coagul Fibrinolysis. 2016 Mar;27(2):136-40. doi: 10.1097/MBC.0000000000000389.
6
Individualizing prophylaxis in hemophilia: a review.血友病的个体化预防：综述
Expert Rev Hematol. 2015 Apr;8(2):237-46. doi: 10.1586/17474086.2015.1002465. Epub 2015 Jan 20.
7
Toward optimal therapy for inhibitors in hemophilia.针对血友病抑制剂的最佳治疗方法。
Blood. 2014 Nov 27;124(23):3365-72. doi: 10.1182/blood-2014-05-577643.
8
Validation of the Chinese version of the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (the CHO-KLAT).加拿大血友病结局-儿童生活评估工具（CHO-KLAT）中文版的验证
Haemophilia. 2014 Nov;20(6):794-9. doi: 10.1111/hae.12489. Epub 2014 Oct 2.
9
Definitions in hemophilia: communication from the SSC of the ISTH.血友病的定义：来自国际血栓与止血学会（ISTH）科学标准化委员会（SSC）的交流文件
J Thromb Haemost. 2014 Nov;12(11):1935-9. doi: 10.1111/jth.12672. Epub 2014 Sep 3.
10
[Ultrasonographic characteristics of haemophilic arthropathy in the knee joints].[膝关节血友病性关节病的超声特征]
Zhonghua Xue Ye Xue Za Zhi. 2014 May;35(5):434-7. doi: 10.3760/cma.j.issn.0253-2727.2014.05.012.

[Consensus of Chinese expert on the diagnosis and treatment of hemophilia (version 2017)].

出版信息

Zhonghua Xue Ye Xue Za Zhi. 2017 May 14;38(5):364-370. doi: 10.3760/cma.j.issn.0253-2727.2017.05.002.

DOI:10.3760/cma.j.issn.0253-2727.2017.05.002
PMID:28565732
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7354196/
Abstract
摘要