Koca Elif, Taşkapilioğlu Özlem, Bakar Mustafa
Uludağ Üniversitesi Tıp Fakültesi, Nöroloji Anabilim Dalı, Bursa, Türkiye.
Noro Psikiyatr Ars. 2017 Mar;54(1):82-86. doi: 10.5152/npa.2017.11304. Epub 2017 Mar 1.
With an increasing number of patients being diagnosed with Alzheimer's disease (AD) daily, it has become one of the major problems in public health. The increase in the number of dementia patients in low- and middle-income countries is expected to be much more than that in developed countries. As a result, the economic burden of dementia, both worldwide and in Turkey, is growing. Moreover, AD leads to emotional burdens and psychological distress in family member(s) and caregiver(s) alongside the patient. Each stage of AD imposes different responsibilities on caregivers, increasing their burden. The suffering and emotional burdens of caregivers from these responsibilities lead to a decreased quality of life and disturbed body physiology. Incapacity, despair, weariness, and loneliness are the hidden emotions of this iceberg. This review aims to gather the results of studies on caregiver burden in different stages of AD, attract attention to those results that may have been ignored in Turkey, and shed light on the solutions required to overcome the problems in caregiving of AD patients.
随着每天被诊断出患有阿尔茨海默病(AD)的患者数量不断增加,它已成为公共卫生领域的主要问题之一。预计低收入和中等收入国家痴呆症患者数量的增长将远远超过发达国家。因此,痴呆症在全球以及土耳其造成的经济负担都在不断加重。此外,AD除了给患者带来痛苦外,还会给家庭成员和护理人员带来情感负担和心理困扰。AD的每个阶段都给护理人员带来不同的责任,加重了他们的负担。护理人员因这些责任而遭受的痛苦和情感负担导致生活质量下降和身体生理紊乱。无能力感、绝望、疲惫和孤独是这座冰山隐藏的情绪。本综述旨在收集关于AD不同阶段护理人员负担的研究结果,引起对土耳其可能被忽视的那些结果的关注,并阐明克服AD患者护理问题所需的解决方案。