Center for Treatment Adherence and Self-Management, Cincinnati Children's Hospital Medical Center.
J Pediatr Psychol. 2018 Jan 1;43(1):52-60. doi: 10.1093/jpepsy/jsx089.
The study aims are to (1) examine the prevalence of risk-taking (i.e., behaviors that can be categorized as rebellious or reckless) and (2) determine the influence of risk-taking on adherence, seizures, and health-related quality of life (HRQOL) in adolescents with epilepsy. An exploratory aim was to identify predictors of risk-taking.
Fifty-four adolescents with epilepsy (M = 15.33 ± 1.46 years) and caregivers completed questionnaires on demographics, risk-taking, parent-child relations, adolescent inattention/hyperactivity, and HRQOL at four time points across 1 year. Seizure occurrence and electronically monitored adherence were also collected.
Rebellious behaviors were normative and stable over 1 year in adolescents with epilepsy. Higher rebelliousness was related to poorer adolescent-reported memory HRQOL. The only significant positive predictor of rebellious behaviors was adolescent age.
Adolescents with epilepsy endorsed normative levels of rebelliousness, which is negatively related to HRQOL. Older adolescents may warrant clinical attention.
本研究旨在：(1) 调查冒险行为（即可归类为叛逆或鲁莽的行为）的流行程度；(2) 确定冒险行为对青少年癫痫患者的依从性、癫痫发作和健康相关生活质量（HRQOL）的影响。探索性目的是确定冒险行为的预测因素。
54 名青少年癫痫患者（M=15.33±1.46 岁）及其照顾者在 1 年内的 4 个时间点完成了关于人口统计学、冒险行为、亲子关系、青少年注意力不集中/多动和 HRQOL 的问卷。还收集了癫痫发作发生情况和电子监测的依从性。
癫痫青少年的叛逆行为具有规范性且在 1 年内保持稳定。较高的叛逆行为与较差的青少年报告的记忆 HRQOL 有关。叛逆行为的唯一显著正向预测因素是青少年年龄。
癫痫青少年表现出规范性的叛逆行为，这与 HRQOL 呈负相关。年龄较大的青少年可能需要临床关注。
