Centre for Health and Social Care Research, Health, Education and Life Sciences (HELS), Birmingham City University, Westbourne Road, Birmingham B15 3TN, United Kingdom.
Centre for Health and Social Care Research, Health, Education and Life Sciences (HELS), Birmingham City University, Westbourne Road, Birmingham B15 3TN, United Kingdom.
Soc Sci Med. 2017 Jul;185:110-117. doi: 10.1016/j.socscimed.2017.05.036. Epub 2017 May 18.
This paper explores the multiple ways experiences of pregnancy and early motherhood come to 'rework' the biographies of women living with epilepsy. Pregnancy is explored as a temporarily concurrent status alongside the long-term condition of epilepsy. Narrative interviews were conducted with 32 women from across the UK. Analysis of these narratives suggests that biographical disruption and continuity are both useful in the conceptualisation of women's diverse experiences of pregnancy and epilepsy. Such findings challenge the notion that the presence of a condition over a long period of time leads to the normalisation of illness. Participants' narratives demonstrate that, for some, pregnancy and early motherhood may be disruptive and can raise concerns regarding an ever present condition that may previously have been taken for granted. Findings also indicate the need for a greater consideration of gender and care responsibilities, as well explorations of concomitant conditions, in the theorising of biographies and chronic illness.
本文探讨了怀孕和早期育儿经历以多种方式“重塑”癫痫女性生活传记的方式。将怀孕视为与癫痫长期状况同时存在的暂时状态进行探讨。研究人员对来自英国各地的 32 名女性进行了叙事采访。对这些叙述的分析表明，传记中断和连续性在概念化女性怀孕和癫痫的多样化经历方面都是有用的。这些发现挑战了这样一种观点，即长期存在一种状况会导致疾病的正常化。参与者的叙述表明，对于一些人来说，怀孕和早期育儿可能会造成干扰，并引起对以前被认为理所当然的现有疾病的担忧。研究结果还表明，在传记和慢性疾病的理论化中，需要更多地考虑性别和护理责任，以及同时存在的疾病。
