Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
North Oxfordshire GP Training Scheme,, Terence Mortimer Education Centre, Horton General Hospital, Banbury, Oxfordshire, UK.
Sociol Health Illn. 2021 May;43(4):928-947. doi: 10.1111/1467-9566.13266. Epub 2021 Apr 1.
Technology development is gathering pace in epilepsy with seizure detection devices promising to transform self-care and service provision. However, such accounts often neglect the uncertainties, displacements and responsibilities that technology-supported care generates. This review brings together a heterogeneous literature, identified through systematic searches in 8 databases and snowball searching, to interrogate how technology becomes positioned in epilepsy care. We took a hermeneutic approach in our analysis of the 206 included articles, which resulted in the development of a conceptual framework surfacing the underlying logics by which technology-supported epilepsy care is organised. Each of these logics enacts different techno-scientific futures and carries specific assumptions about how (often imagined) 'users' and their bodies become co-constituted. Our review shows that studies in this area remain primarily deterministic and technology-focused. Few draw phenomenological insights on lived experiences with epilepsy or use social theory to problematise the role of technology. We propose future directions for sociotechnical, theory-driven studies of technology in epilepsy care and offer a framework transferable across other long-term conditions.
随着癫痫发作检测设备的发展步伐加快，有望改变自我护理和服务提供方式。然而，这些描述往往忽略了技术支持的护理所产生的不确定性、转移和责任。本综述通过在 8 个数据库和滚雪球搜索中进行系统搜索，汇集了异质文献，以探究技术如何在癫痫护理中定位。我们在对 206 篇纳入文章的分析中采用了诠释学方法，得出了一个概念框架，揭示了组织技术支持的癫痫护理的基本逻辑。这些逻辑中的每一个都体现了不同的技术科学未来，并对（通常想象的）“用户”及其身体如何共同构成持有特定假设。我们的综述表明，该领域的研究仍然主要是确定性的和以技术为中心的。很少有研究从现象学的角度探讨癫痫的生活体验，也很少有研究使用社会理论来探讨技术的作用。我们为癫痫护理中技术的社会技术、理论驱动研究提出了未来的方向，并提供了一个可跨其他长期疾病转移的框架。
