Lee Lisa M
Presidential Commission for the Study of Bioethical Issues, 330 C St SW, L001, Washington DC 20201, United States.
J Biomed Inform. 2017 Jul;71:143-146. doi: 10.1016/j.jbi.2017.05.022. Epub 2017 May 31.
The digital health landscape in the United States is evolving and electronic health record data hold great promise for improving health and health equity. Like many scientific and technological advances in health and medicine, there exists an exciting narrative about what we can do with the new technology, as well as reflection about what we should do with it based on what we value. Ethical reflections about the use of EHR data for research and quality improvement have considered the important issues of privacy and informed consent for subsequent use of data. Additional ethical aspects are important in the conversation, including data validity, patient obligation to participate in the learning health system, and ethics integration into training for all personnel who interact with personal health data. Attention to these ethical issues is paramount to our realizing the benefits of electronic health data.
美国的数字健康格局正在不断演变，电子健康记录数据在改善健康和健康公平性方面具有巨大潜力。与健康和医学领域的许多科技进步一样，对于这项新技术我们所能做的事情，存在着令人兴奋的描述，同时也有基于我们所重视的价值对我们应该如何利用它的思考。关于将电子健康记录数据用于研究和质量改进的伦理思考，已经考虑到了隐私以及后续数据使用的知情同意等重要问题。在这场讨论中，其他伦理方面也很重要，包括数据有效性、患者参与学习型健康系统的义务，以及将伦理融入与个人健康数据交互的所有人员的培训中。关注这些伦理问题对于我们实现电子健康数据的益处至关重要。
