Mortenson W Ben, Demers Louise, Rushton Paula W, Auger Claudine, Routhier François, Miller William C
Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
International Collaboration on Repair Discoveries, Research Lab, Vancouver, British Columbia, Canada.
PLoS One. 2017 Jun 6;12(6):e0178554. doi: 10.1371/journal.pone.0178554. eCollection 2017.
Caregiver burnout is a serious concern among informal caregivers, especially for those who provide care to individuals with more severe limitations such as power mobility users. The Power Wheelchair Caregiver Assistive Technology Outcome Measure tool measures device specific and overall burden experienced by informal caregivers of power mobility users. A one-month, test-retest study was conducted to examine the reliability, internal consistency, and construct validity of the Power Wheelchair Caregiver Assistive Technology Outcome Measure. Two construct validity measures were administered: the Hospital Anxiety and Depression Scale and the Late Life Disability Index. The test-retest-reliabilities of part 1 (power wheelchair specific burden) and part 2 (general caregiving burden) were 0.769 and 0.843 respectively. Scores on part 1 were moderately and positively correlated with part 2 and with frequency of participation. Scores on part 2 were moderately and negatively correlated with anxiety, depression, and positively with perceived limitation of participation. The strength and direction of these correlations provide support for the construct validity of the measure and suggest part 1 and part 2 provide complementary information. Further testing is needed to assess the clinical utility and responsiveness of the measure.
照顾者倦怠是非正式照顾者面临的一个严重问题，对于那些为有更严重行动受限的个体（如电动轮椅使用者）提供照顾的人来说尤其如此。电动轮椅照顾者辅助技术结果测量工具用于测量电动轮椅使用者的非正式照顾者所经历的特定设备负担和总体负担。开展了一项为期一个月的重测研究，以检验电动轮椅照顾者辅助技术结果测量的信度、内部一致性和结构效度。采用了两种结构效度测量方法：医院焦虑抑郁量表和晚年残疾指数。第1部分（电动轮椅特定负担）和第2部分（一般照顾负担）的重测信度分别为0.769和0.843。第1部分的得分与第2部分以及参与频率呈中度正相关。第2部分的得分与焦虑、抑郁呈中度负相关，与感知到的参与受限呈正相关。这些相关性的强度和方向为该测量的结构效度提供了支持，并表明第1部分和第2部分提供了互补信息。需要进一步测试以评估该测量的临床效用和反应性。
