1 Section of Palliative Medicine and Hospice Medicine, Lehigh Valley Health Network, Allentown, Pennsylvania
2 Division of General Medicine, Vanderbilt University, Nashville, Tennessee
Ann Am Thorac Soc. 2017 Jul;14(7):1094-1102. doi: 10.1513/AnnalsATS.201607-577PS.
Burn specialists have long recognized the need for and have role modeled a comprehensive approach incorporating relief of distress as part of care during critical illness. More recently, palliative care specialists have become part of the healthcare team in many U.S. hospitals, especially larger academic institutions that are more likely to have designated burn centers. No current literature describes the intersection of palliative care and burn care or integration of primary and specialist palliative care in this unique context. This Perspective gives an overview of burn care; focuses on pain and other symptoms in burn intensive care unit settings; addresses special needs of critically ill burned patients, their families, and clinicians for high-quality palliative care; and highlights potential benefits of integrating primary and specialist palliative care in burn critical care. MEDLINE and the Cumulative Index to Nursing and Allied Health Literature were searched, and an e-mail survey was used to obtain information from U.S. Burn Fellowship Program directors about palliative medicine training. The Improving Palliative Care in the Intensive Care Unit Project Advisory Board synthesized published evidence with their own research and clinical experience in preparing this article. Mortality and severe morbidity for critically ill burned patients remains high. American Burn Association guidelines lay the foundation for a robust system of palliative care delivery, embedding palliative care principles and processes in intensive care by burn providers. Understanding basic burn care, challenges for symptom management and communication, and the culture of the particular burn unit, can optimize quality and integration of primary and specialist palliative care in this distinctive setting.
烧伤专家长期以来一直认识到,在重病护理过程中,需要将缓解痛苦纳入全面护理方法中,并为此树立了榜样。最近,姑息治疗专家已成为许多美国医院医疗团队的一部分,尤其是在更有可能设有指定烧伤中心的较大型学术机构中。目前尚无文献描述姑息治疗与烧伤治疗之间的交叉点,或在这种独特的环境下整合初级和专科姑息治疗。本文概述了烧伤护理;重点介绍烧伤重症监护病房环境中的疼痛和其他症状;探讨了重症烧伤患者及其家属和临床医生对高质量姑息治疗的特殊需求;并强调了在烧伤重症护理中整合初级和专科姑息治疗的潜在益处。本文检索了 MEDLINE 和 Cumulative Index to Nursing and Allied Health Literature,并通过电子邮件调查从美国烧伤研究员项目主任那里获取了有关姑息医学培训的信息。为了编写本文,改善重症监护病房姑息治疗项目顾问委员会综合了已发表的证据以及他们自己的研究和临床经验。重症烧伤患者的死亡率和严重发病率仍然很高。美国烧伤协会指南为提供强大的姑息治疗服务系统奠定了基础,将姑息治疗原则和流程嵌入到烧伤提供者的重症监护中。了解基本的烧伤护理、症状管理和沟通方面的挑战,以及特定烧伤病房的文化,可以优化这种独特环境下初级和专科姑息治疗的质量和整合。