Heesen Christoph, Bruce Jared, Gearing Robert, Moss-Morris Rona, Weinmann John, Hamalainen Paivi, Motl Robert, Dalgas Ulrik, Kos Daphne, Visioli Franceso, Feys Peter, Solari Alessandra, Finlayson Marcia, Eliasson Lina, Matthews Vicki, Bogossian Angeliki, Liethmann Katrin, Köpke Sascha, Bissell Paul
Institute of Neuroimmunology and Clinical MS Research (inims) and Department of Neurology, UMC Hamburg Eppendorf, Germany.
University of Missouri - Kansas City, Department of Psychology, USA.
Mult Scler J Exp Transl Clin. 2015 May 12;1:2055217315585333. doi: 10.1177/2055217315585333. eCollection 2015 Jan-Dec.
After an initial meeting in 2013 that reviewed adherence to disease modifying therapy, the AD@MS group conducted a follow-up meeting in 2014 that examined adherence to behavioural interventions in MS (e.g. physical activity, diet, psychosocial interventions). Very few studies have studied adherence to behavioural interventions in MS. Outcomes beyond six months are lacking, as well as implementation work in the community. Psychological interventions need to overcome stigma and other barriers to facilitate initiation and maintenance of behaviour change. A focus group concentrated on physical activity and exercise as one major behavioural intervention domain in MS. The discussion revealed that patients are confronted with multiple challenges when attempting to regularly engage in physical activity. Highlighted needs for future research included an improved understanding of patients' and health experts' knowledge and attitudes towards physical activity as well as a need for longitudinal research that investigates exercise persistence.
在2013年召开了一次关于疾病改善治疗依从性的初步会议之后，多发性硬化症行为干预依从性研究小组（AD@MS group）于2014年召开了一次后续会议，此次会议审视了多发性硬化症（MS）行为干预（如体育活动、饮食、心理社会干预）的依从性情况。很少有研究对MS行为干预的依从性进行过研究。目前缺乏超过六个月的研究成果，同时也缺乏社区层面的实施工作。心理干预需要克服耻辱感和其他障碍，以促进行为改变的启动和维持。一个焦点小组将体育活动和锻炼作为MS的一个主要行为干预领域展开了讨论。讨论结果显示，患者在尝试定期进行体育活动时面临着多重挑战。未来研究的重点需求包括更好地了解患者和健康专家对体育活动的知识和态度，以及开展纵向研究以调查锻炼的持续性。
