Cruz Joana, Marques Alda, Machado Ana, O'Hoski Sachi, Goldstein Roger, Brooks Dina
Lab3R - Respiratory Research and Rehabilitation Laboratory, School of Health Sciences, University of Aveiro (ESSUA), Campus Universitário de Santiago, Agras do Crasto, Edifício 30, 3810-193 Aveiro, Portugal; Institute for Research in Biomedicine (iBiMED), University of Aveiro, Campus Universitário de Santiago, Agras do Crasto, Edifício 30, 3810-193 Aveiro, Portugal; Rehabilitation Science Institute and Department of Physical Therapy, University of Toronto, 160-500 University Avenue, Toronto, ON M5G 1V7, Canada.
Lab3R - Respiratory Research and Rehabilitation Laboratory, School of Health Sciences, University of Aveiro (ESSUA), Campus Universitário de Santiago, Agras do Crasto, Edifício 30, 3810-193 Aveiro, Portugal; Institute for Research in Biomedicine (iBiMED), University of Aveiro, Campus Universitário de Santiago, Agras do Crasto, Edifício 30, 3810-193 Aveiro, Portugal.
Respir Med. 2017 Jul;128:13-27. doi: 10.1016/j.rmed.2017.05.002. Epub 2017 May 6.
Increasing symptoms and activity restriction associated with COPD progression greatly impact on the lives of their informal caregivers, who play a vital role in maintaining their health. An understanding of this impact is important for clinicians to support caregivers and maintain a viable patient environment at home. This systematic review aimed to identify the instruments commonly used to assess informal caregiving in COPD and describe their measurement properties in this population.
Searches were conducted in PubMed, Scopus, Web of Science, CINAHL and PsycINFO and in references of key articles, until November 2016 (PROSPERO: CRD42016041401). Instruments used to assess the impact of COPD on caregivers were identified and their properties described. Quality of studies was rated using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. Quality of the measurement properties of instruments was rated as 'positive', 'negative' or 'indeterminate'.
Patients cared for, had moderate to very severe COPD and the sample of caregivers ranged from 24 to 406. Thirty-five instruments were used in fifty studies to assess caregivers' psychological status and mood (9 instruments), burden/distress (12 instruments), quality of life (5 instruments) or other (9 instruments). Eighteen studies assessed the measurement properties of 21 instruments, most commonly hypothesis testing (known validity) and internal consistency. Study quality varied from 'poor' to 'fair' and with many properties rated as 'indeterminate'.
Although several instruments have been used to assess the impact of COPD on caregivers, an increased understanding of their properties is needed before their widespread implementation.
与慢性阻塞性肺疾病（COPD）进展相关的症状加重和活动受限对其非正式照护者的生活产生了极大影响，这些照护者在维持患者健康方面发挥着至关重要的作用。了解这种影响对于临床医生支持照护者并在家中维持可行的患者环境非常重要。本系统评价旨在确定常用于评估COPD患者非正式照护情况的工具，并描述这些工具在该人群中的测量特性。
检索了PubMed、Scopus、Web of Science、CINAHL和PsycINFO数据库以及关键文章的参考文献，检索截止至2016年11月（国际前瞻性系统评价注册库：CRD42016041401）。确定了用于评估COPD对照护者影响的工具，并描述了其特性。使用基于共识的健康测量工具选择标准（COSMIN）清单对研究质量进行评分。工具测量特性的质量被评为“阳性”、“阴性”或“不确定”。
所照护的患者患有中度至非常严重的COPD，照护者样本数量从24人到406人不等。50项研究中使用了35种工具来评估照护者的心理状态和情绪（9种工具）、负担/痛苦（12种工具）、生活质量（5种工具）或其他方面（9种工具）。18项研究评估了21种工具的测量特性，最常见的是假设检验（已知效度）和内部一致性。研究质量从“差”到“尚可”不等，许多特性被评为“不确定”。
尽管已经使用了几种工具来评估COPD对照护者的影响，但在广泛应用之前，需要进一步了解其特性。
