Cunningham Maggie, Wells Mary
NMAHP Research Unit, University of Stirling, Stirling, UK.
BMJ Open. 2017 Jun 15;7(6):e015726. doi: 10.1136/bmjopen-2016-015726.
To analyse free-text responses from the first Scottish Cancer Patient Experience Survey (SCPES) to understand patients' experiences of care, identify valued aspects and areas for improvement.
Inductive thematic analysis of seven free-text comment boxes covering all stages of the cancer experience, from a national cohort survey.
Adult cancer patients diagnosed across all Health Boards in Scotland between July 2013 and March 2014, and who had an inpatient stay or hospital visit between January and September 2014. 2663 respondents (of n=4835 survey respondents) provided 6961 free-text comments.
Positive and negative themes of patients' experiences. Differences in the proportion of positive to negative comments by demographics.
Data were analysed as follows: (1) comments were initially categorised at a high level (eg, positive, negative, miscellaneous, etc); (2) inductive codes were derived and applied to all relevant comments; (3) codes sharing similar meaning were amalgamated into subthemes, and code frequencies were measured; (4) subthemes were mapped into overarching themes; (5) difference in the proportion of positive to negative comments by demographics were analysed using χ tests.
Participants made more positive than negative comments (1:0.78). Analysis highlighted the importance to patients of and . Comments also provided insight into how and within the system of care can negatively impact on patients' experience. Particular issues were identified with care experiences in the lead-up to diagnosis.
This analysis provides a detailed understanding of patients' cancer care experiences, therefore indicating what aspects matter in those experiences. Although the majority of comments were positive, there were a significant number of negative comments, especially about the lead-up to diagnosis. Comments suggest patients would value greater integration of care from services involved in their treatment for cancer.
分析首次苏格兰癌症患者体验调查（SCPES）中的自由文本回复，以了解患者的护理体验，确定有价值的方面和改进领域。
对来自全国队列调查的七个自由文本评论框进行归纳主题分析，这些评论框涵盖癌症体验的各个阶段。
2013年7月至2014年3月期间在苏格兰所有卫生委员会被诊断为癌症的成年患者，且在2014年1月至9月期间有过住院或门诊就诊经历。4835名调查受访者中有2663名受访者提供了6961条自由文本评论。
患者体验的积极和消极主题。按人口统计学特征划分的积极评论与消极评论比例的差异。
数据分析如下：（1）评论最初在较高层面进行分类（如积极、消极、杂项等）；（2）得出归纳编码并应用于所有相关评论；（3）将含义相似的编码合并为子主题，并测量编码频率；（4）将子主题映射到总体主题中；（5）使用χ检验分析按人口统计学特征划分的积极评论与消极评论比例的差异。
参与者给出的积极评论多于消极评论（比例为1:0.78）。分析突出了[此处原文缺失部分内容]对患者的重要性。评论还深入了解了护理系统中的[此处原文缺失部分内容]如何对患者体验产生负面影响。在诊断前的护理体验中发现了一些特定问题。
该分析详细了解了患者的癌症护理体验，从而表明这些体验中哪些方面很重要。尽管大多数评论是积极的，但也有相当数量的消极评论，特别是关于诊断前的阶段。评论表明患者重视参与其癌症治疗的各服务之间更好的护理整合。
