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简要报告:内盖夫医院-大学联合(HUB)自闭症数据库。

Brief Report: The Negev Hospital-University-Based (HUB) Autism Database.

机构信息

Pre-School Psychiatry Unit, Soroka University Medical Center, Beer Sheva, Israel.

Psychology Department, Ben-Gurion University of the Negev, Beer Sheva, Israel.

出版信息

J Autism Dev Disord. 2017 Sep;47(9):2918-2926. doi: 10.1007/s10803-017-3207-0.

Abstract

Elucidating the heterogeneous etiologies of autism will require investment in comprehensive longitudinal data acquisition from large community based cohorts. With this in mind, we have established a hospital-university-based (HUB) database of autism which incorporates prospective and retrospective data from a large and ethnically diverse population. The collected data includes social-demographic characteristics, standardized behavioral testing, detailed clinical history from electronic patient records, genetic samples, and various neurological measures. We describe the initial cohort characteristics following the first 18 months of data collection (188 children with autism). We believe that the Negev HUB autism database offers a unique and valuable resource for studying the heterogeneity of autism etiologies across different ethnic populations.

摘要

阐明自闭症的异质性病因需要从大型基于社区的队列中投入综合的纵向数据采集。考虑到这一点,我们已经建立了一个基于医院-大学的自闭症数据库,其中包含了来自一个大型和种族多样化人群的前瞻性和回顾性数据。收集的数据包括社会人口统计学特征、标准化行为测试、来自电子病历的详细临床病史、遗传样本和各种神经测量。我们描述了数据收集的前 18 个月(188 名自闭症儿童)后的初始队列特征。我们认为,内盖夫 HUB 自闭症数据库为研究不同种族人群中自闭症病因的异质性提供了一个独特而有价值的资源。

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