Sajadi Seyedeh Azam, Ebadi Abbas, Moradian Seyed Tayeb
Department of Medical-Surgical, School of Nursing, AJA University of Medical Sciences, Tehran, Iran.
Behavioral Sciences Research Center, School of Nursing, Baqiyatallah University of Medical Sciences, Tehran, Iran.
Int J Community Based Nurs Midwifery. 2017 Jul;5(3):206-218.
Family caregivers are considered as hidden patients experiencing physical and mental disorders. This affects the quality of not only their lives but also the health care provided to patients.This study aimed to investigate the quality of life (QOL) and its related factors among the caregivers of patients undergoing hemodialysis.
This systematic review was conducted based on the eight-step guidelines presented by the York University. The databases relevant to the medical field including Nursing and Allied Health, Web of Science, Scopus, Pubmed, Embase, PsycINFO and Psychology Library were used. Finally, 12 articles observing the inclusion criteria and with regard to the research questions were found. The data obtained from these articles were summarized, classified, and analyzed.
QOL among Family Caregivers of Patients on Hemodialysis is low, compared to the general population; however, their QOL is higher than the patients under their care. Factors relevant to the QOL for caregivers including age, gender, perceived social support, perceived burden of care, affliction with other diseases (lupus, hypertension, hypothyroidism and depression), intellectual understanding of the limitations of the patient's disease in their daily life, employment of adaptation strategies, better marital relationships, accepting self and family relationship with the patient (mother and wife). Furthermore, the factors associated with care takers affecting the quality of caregivers' lives were age, QOL and the type of treatment.
Caregivers of patients undergoing hemodialysis enjoyed low QOL. Since there is a direct relationship between family caregivers' quality and patients' QOL, health care system and health policy makers should pay more attention to family caregivers.
家庭照顾者被视为患有身心障碍的隐性患者。这不仅影响他们的生活质量，也影响为患者提供的医疗服务质量。本研究旨在调查血液透析患者照顾者的生活质量（QOL）及其相关因素。
本系统评价是根据约克大学提出的八步指南进行的。使用了与医学领域相关的数据库，包括护理与联合健康、科学网、Scopus、Pubmed、Embase、PsycINFO和心理学图书馆。最后，发现了12篇符合纳入标准且与研究问题相关的文章。对从这些文章中获得的数据进行了总结、分类和分析。
与普通人群相比，血液透析患者家庭照顾者的生活质量较低；然而，他们的生活质量高于其所照顾的患者。与照顾者生活质量相关的因素包括年龄、性别、感知到的社会支持、感知到的照顾负担、患有其他疾病（狼疮、高血压、甲状腺功能减退和抑郁症）、对患者疾病在日常生活中的局限性的智力理解、采用适应策略、更好的婚姻关系、接受自我以及与患者的家庭关系（母亲和妻子）。此外，影响照顾者生活质量的与照顾者相关的因素是年龄、生活质量和治疗类型。
血液透析患者的照顾者生活质量较低。由于家庭照顾者的质量与患者的生活质量之间存在直接关系，医疗保健系统和卫生政策制定者应更加关注家庭照顾者。
