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透析患者照料者的生活质量

Quality of Life Among Attendants/Caregivers of Dialysis Patients.

作者信息

Afzal Aurangzeb, Rahman Hafza Sumaira, Rauf Muhammad Ahmad, Rafique Zahid, Gulzar Areeba, Rasheed Waqas, Mobushar Jehangir Afzal, Bajwa Beenish Abbas, Naeem Iqra, Jamil Muhammad Irfan

机构信息

Nephrology, Services Hospital Lahore, Lahore, PAK.

Medicine, Rashid Hospital, Dubai, ARE.

出版信息

Cureus. 2025 May 12;17(5):e83989. doi: 10.7759/cureus.83989. eCollection 2025 May.

Abstract

AIM AND BACKGROUND

Caregivers of dialysis patients often face substantial physical, psychological, and social challenges impacting their quality of life. This study aimed to evaluate caregivers' quality of life across multiple domains using the World Health Organization Quality of Life-BREF (WHOQOL-BREF) assessment tool.

METHODS

A hospital-based cross-sectional study was conducted at the Dialysis Center of Services Hospital Lahore from March to August 2024. A total of 164 caregivers of adult patients undergoing maintenance hemodialysis were enrolled using consecutive sampling after obtaining written informed consent. Data were collected through face-to-face interviews using a structured Urdu-language questionnaire incorporating the WHOQOL-BREF tool. Caregivers aged ≥18 years, providing unpaid care for ≥3 months, were included. WHOQOL-BREF assessed four quality-of-life domains. Data were analyzed using IBM SPSS Statistics for Windows, Version 26 (Released 2019; IBM Corp., Armonk, New York), with p ≤ 0.05 considered statistically significant.

RESULTS

Out of 164 caregivers enrolled, 88 (53.7%) were male and 76 (46.3%) female, with the majority being married and having at least intermediate education. Most caregivers were sons, wives, or daughters of the dialysis patients. The mean scores across WHOQOL-BREF domains were physical health 50.01 ± 13.70, psychological health 54.10 ± 14.50, social relationships 60.83 ± 22.08, and environmental domain 51.57 ± 16.91. No statistically significant associations were observed between physical, psychological, or environmental domain scores and gender, marital status, education level, age group, or caregiver-patient relationship (p > 0.05). However, the social relationships domain showed a statistically significant difference across age groups (p = 0.017), with higher scores in older caregivers. All other domain comparisons remained statistically non-significant (p > 0.05). Overall, caregiver quality of life was highest in the social domain and lowest in the physical domain.

CONCLUSION

Caregivers of dialysis patients reported moderate overall quality of life, with the highest scores in social relationships and the lowest in physical health. While caregiver age significantly influenced social domain scores, other sociodemographic factors (gender, marital status, education, and relationship) did not show significant associations. These findings highlight the need for targeted interventions addressing physical health and age-specific social support.

摘要

目的与背景

透析患者的照料者常常面临重大的身体、心理和社会挑战,这些挑战会影响他们的生活质量。本研究旨在使用世界卫生组织生活质量简表(WHOQOL - BREF)评估工具,从多个领域评估照料者的生活质量。

方法

2024年3月至8月,在拉合尔服务医院透析中心开展了一项基于医院的横断面研究。在获得书面知情同意后,采用连续抽样的方法,共纳入了164名接受维持性血液透析的成年患者的照料者。通过面对面访谈,使用包含WHOQOL - BREF工具的结构化乌尔都语问卷收集数据。纳入年龄≥18岁、提供无偿照料≥3个月的照料者。WHOQOL - BREF评估了四个生活质量领域。使用IBM SPSS Statistics for Windows 26版(2019年发布;IBM公司,纽约州阿蒙克)进行数据分析,p≤0.05被认为具有统计学意义。

结果

在纳入研究的164名照料者中,88名(53.7%)为男性,76名(46.3%)为女性,大多数已婚且至少接受过中等教育。大多数照料者是透析患者的儿子、妻子或女儿。WHOQOL - BREF各领域的平均得分分别为:身体健康50.01±13.70,心理健康54.10±14.50,社会关系60.83±22.08,环境领域51.57±16.91。在身体、心理或环境领域得分与性别、婚姻状况、教育水平、年龄组或照料者与患者的关系之间,未观察到统计学上的显著关联(p>0.05)。然而,社会关系领域在不同年龄组之间存在统计学上的显著差异(p = 0.017),年长的照料者得分更高。所有其他领域的比较在统计学上仍无显著差异(p>0.05)。总体而言,照料者的生活质量在社会领域最高,在身体领域最低。

结论

透析患者的照料者报告的总体生活质量中等,社会关系得分最高,身体健康得分最低。虽然照料者年龄显著影响社会领域得分,但其他社会人口学因素(性别、婚姻状况、教育程度和关系)未显示出显著关联。这些发现凸显了针对身体健康和特定年龄的社会支持进行有针对性干预的必要性。

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