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癌症治疗后幸存者的癌症相关疲劳:基于理论的网络干预开发

Cancer-Related Fatigue in Post-Treatment Cancer Survivors: Theory-Based Development of a Web-Based Intervention.

作者信息

Corbett Teresa, Walsh Jane C, Groarke AnnMarie, Moss-Morris Rona, Morrissey Eimear, McGuire Brian E

机构信息

Centre for Clinical and Community Applications of Health Psychology (CCCAHP), School of Psychology, Faculty of Social, Human and Mathematical Sciences, Southampton, United Kingdom.

School of Psychology, NUI Galway, Galway, Ireland.

出版信息

JMIR Cancer. 2017 Jul 4;3(2):e8. doi: 10.2196/cancer.6987.

Abstract

BACKGROUND

Cancer-related fatigue (CrF) is the most common and disruptive symptom experienced by cancer survivors. We aimed to develop a theory-based, interactive Web-based intervention designed to facilitate self-management and enhance coping with CrF following cancer treatment.

OBJECTIVE

The aim of our study was to outline the rationale, decision-making processes, methods, and findings which led to the development of a Web-based intervention to be tested in a feasibility trial. This paper outlines the process and method of development of the intervention.

METHODS

An extensive review of the literature and qualitative research was conducted to establish a therapeutic approach for this intervention, based on theory. The psychological principles used in the development process are outlined, and we also clarify hypothesized causal mechanisms. We describe decision-making processes involved in the development of the content of the intervention, input from the target patient group and stakeholders, the design of the website features, and the initial user testing of the website.

RESULTS

The cocreation of the intervention with the experts and service users allowed the design team to ensure that an acceptable intervention was developed. This evidence-based Web-based program is the first intervention of its kind based on self-regulation model theory, with the primary aim of targeting the representations of fatigue and enhancing self-management of CrF, specifically.

CONCLUSIONS

This research sought to integrate psychological theory, existing evidence of effective interventions, empirically derived principles of Web design, and the views of potential users into the systematic planning and design of the intervention of an easy-to-use website for cancer survivors.

摘要

背景

癌症相关疲劳(CrF)是癌症幸存者经历的最常见且具有破坏性的症状。我们旨在开发一种基于理论的交互式网络干预措施,以促进自我管理并增强癌症治疗后应对CrF的能力。

目的

我们研究的目的是概述导致开发一种将在可行性试验中进行测试的网络干预措施的基本原理、决策过程、方法和结果。本文概述了该干预措施的开发过程和方法。

方法

基于理论进行了广泛的文献综述和定性研究,以确立该干预措施的治疗方法。概述了开发过程中使用的心理学原理,我们还阐明了假设的因果机制。我们描述了干预措施内容开发过程中涉及的决策过程、目标患者群体和利益相关者的意见、网站功能的设计以及网站的初步用户测试。

结果

与专家和服务使用者共同创建干预措施,使设计团队能够确保开发出一种可接受的干预措施。这个基于证据的网络程序是首个基于自我调节模型理论的此类干预措施,其主要目标特别是针对疲劳的表象并增强对CrF的自我管理。

结论

本研究试图将心理学理论、有效干预措施的现有证据、基于经验得出的网页设计原则以及潜在用户的意见整合到一个易于使用的癌症幸存者网站干预措施的系统规划和设计中。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/283b/5516102/deb5cad97004/cancer_v3i2e8_fig1.jpg

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