癌症治疗后疲劳的管理:RESTORE的开发,一个支持自我管理的网络资源。

Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management.

作者信息

Foster C, Calman L, Grimmett C, Breckons M, Cotterell P, Yardley L, Joseph J, Hughes S, Jones R, Leonidou C, Armes J, Batehup L, Corner J, Fenlon D, Lennan E, Morris C, Neylon A, Ream E, Turner L, Richardson A

机构信息

Faculty of Health Sciences, University of Southampton, Southampton, SO17 1BJ, UK.

School of Psychology, University of Southampton, Southampton, SO17 1BJ, UK.

出版信息

Psychooncology. 2015 Aug;24(8):940-9. doi: 10.1002/pon.3747. Epub 2015 Feb 2.

Abstract

OBJECTIVE

The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.

METHODS

A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.

RESULTS

Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.

CONCLUSIONS

It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

摘要

目的

本研究旨在共同创建一种基于证据且理论依据充分的网络干预措施(RESTORE),以提高癌症患者在接受原发性癌症治疗后应对癌症相关疲劳(CRF)的自我效能感。

方法

干预措施的开发遵循九个步骤:(1)实证文献综述;(2)现有患者资源综述;(3)建立理论框架;(4)组建由网络干预、CRF及癌症患者相关专业知识的设计团队;(5)开发干预原型;(6)用户测试第一阶段;(7)完善原型;(8)用户测试第二阶段;(9)开发最终干预措施。

结果

关键利益相关者在干预开发和用户测试的每一步都做出了重要贡献,用户测试采用迭代过程并最终形成了干预措施。RESTORE干预措施有五个环节;环节1和2包括CRF介绍和目标设定。环节3至5可根据用户偏好进行调整,旨在涵盖CRF可能产生影响的生活领域:家庭和工作生活、人际关系及情绪调节。

结论

系统地“共同创建”一种基于证据且理论驱动的网络自我管理干预措施以支持癌症幸存者应对癌症及其治疗后果是可行的。这是首次关于开发支持应对CRF自我效能感的网络干预措施的描述。现在有必要进行一项探索性试验来测试RESTORE的可行性和可接受性。

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